Allentown
woman offers aid to others with rare disease
(Allentown,
Penn. -- The Morning Call) Joan Stevenson first noticed something
wrong while walking uphill on a city sidewalk: She couldn't take
more than a few steps without stopping to catch her breath....
Now 74 and breathing easier after years
of treatment, she wants to educate others about the disease that strikes
infants
as well as elderly, blacks as well as whites, and men as well
as
women. She wants to help those similarly afflicted to get the
help they need to avoid organ failure or premature death.
To that
end,
she has joined the national Pulmonary Hypertension Association
and runs a support group that meets at Sacred Heart Hospital in
Allentown.
Special
Events Grants for Support Groups Only:
PHA Special
Events Seed Grants
To cap Awareness Month, we are proud to announce the launch of our Special
Events Seed Grant Call for Proposals! We want the spirit of Awareness Month to extend past the month of November and will offer 10 seed-grants of up to $1,000 each for the top proposals submitted on
behalf of Support Groups for volunteer special events to take place in 2005!
Thanks to the generous sponsorship of
CoTherix Inc. we are able to keep the energy of Awareness month going
and encourage new fundraising and awareness building activities throughout
2005! Details to come very soon!
FDA
Approves Intravenous Dosing of Remodulin(R) for the Treatment
of Pulmonary Arterial Hypertension
SILVER
SPRING, Md. and RESEARCH TRIANGLE PARK, N.C., Nov. 24 /PRNewswire-FirstCall/
-- United Therapeutics Corporation (Nasdaq: UTHR) announced
today
that the U.S. Food and Drug Administration (FDA) has issued
an approval letter
for the intravenous use of Remodulin based on data establishing
its
bioequivalence with the previously approved subcutaneous
administration of
Remodulin. As a result of this approval of United Therapeutics'
supplemental
New Drug Application that was filed ten months ago, Remodulin
is immediately
available for commercial intravenous use.
Pulmonary
Hypertension - A Patient's Survival Guide The premiere information resource
for people dealing with PH -- they have ARRIVED and are ready to
ship!!!
The author, a PH patient herself,
knows what it is like to live with the disease. She talked to many
other patients, doctors, and researchers while writing the Survival
Guide. Dr. Ronald J. Oudiz and a team of physicians with a deep
knowledge of PH edited the book for accuracy.
New edition contains a chart
of 15 drugs used to treat PH; results of recent
clinical trials;
in-depth discussion of PH secondary to other diseases
or conditions;
a new chapter on what to eat if you have PH; and much, much more!
'I keep pushing all the time':
Londoner Lynn Horton spent nearly a year going from doctor to doctor, trying
to figure out the mysterious illness that changed her life.
(The London Free Press) Lynn Horton says she
has been credited with saving her own life. What else can you
do when you suffer from a disease
often mistaken for other illnesses? ...The London woman spent nearly a
year visiting doctors and searching the Internet to find reasons
why she was so
tired and short of breath. ...The answer is pulmonary hypertension, sometimes
called the other high blood pressure because it's concentrated in the arteries
of
the lungs.
The
new "PHenomenal Hope" wristbands are selling fast! PH Special Events
Volunteer Liz Rossi had to order an additional 100 wristbands to distribute
to her daughter's peers at school and others have told us that kids
in elementary through to college are eager to get their PH wristband!
We want to encourage you to consider purchasing
them to share or sell at your child or teen's school to raise awareness and visibility about
PH. We also heard of Support Group's receiving $2 donations
for wristbands, so you might consider using them as a fundraiser and
suggesting
that friends donate what they can (above the cost of 1 dollar) for
the wristbands!
The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.
