Thanks to all
who have been patient as our shipment of PHenomenal Hope wristbands
was delayed due to the Chinese New Year and customs. We are now
working to get over 6,000 back orders out!
Haven't gotten
your wristbands yet? Get them at the PHA
store before we have to put in another order!
Iloprost
Inhalation Solution : A Non-Invasive Alternative to Treat Pulmonary
Arterial Hypertension
CoTherix, Inc. announced today
the commercial availability of Ventavis® (iloprost) Inhalation Solution
in the U.S. for the treatment of pulmonary arterial hypertension
(PAH) (WHO Group I) in patients with NYHA Class III or IV symptoms.
PAH is a progressive, highly debilitating and potentially fatal
disease characterized by high blood pressure in the pulmonary arteries.
(March 17, 2005) The Senate voted 63 to 37 to accept an amendment proposed by Sen. Arlen Specter (R-PA) to the FY 2006 budget resolution that will allow $1.5 billion more for NIH in the appropriations process.
Specter's amendment recommends bolstering the budget's function 550, which covers health, by $1.5 billion for NIH. The increase would be offset by a reduction in function 920, an administrative account.
Pulmonary
Hypertension - A Patient's Survival Guide The premiere information resource
for people dealing with PH -- they have ARRIVED and are ready to
ship!!!
The author, a PH patient herself,
knows what it is like to live with the disease. She talked to many
other patients, doctors, and researchers while writing the Survival
Guide. Dr. Ronald J. Oudiz and a team of physicians with a deep
knowledge of PH edited the book for accuracy.
New edition contains a chart
of 15 drugs used to treat PH; results of recent
clinical trials;
in-depth discussion of PH secondary to other diseases
or conditions;
a new chapter on what to eat if you have PH; and much, much more!
Grandmother
with disabling disease keeps active, positive
What Joan Rupert lacks in good health, she makes up for with moxie. Rupert has pulmonary arterial hypertension, or PAH, brought on by schleroderma, an autoimmune disease that causes hardening of the skin, blood vessels and organs through overproduction of collagen, the glue that holds the body's tissues together.
If you haven't been to the PHA
website lately, you might want to see what's new... Besides
the new look, you will find new advocacy
tools, new Spanish
pieces, a growing section for caregivers,
and much more!
This is still a work in progress,
and we're especially looking for valuable content for our new sections,
and suggestions for improvement. Please feel free to contact us
at web@phassociation.org
with any comments.
Change law on organ donation
The mother of a seriously
ill Norfolk teenager made an impassioned plea last night for the Government
to change the laws governing organ donation. Debbie Storey, whose 15-year-old
daughter Natasha urgently needs a heart and lung transplant, has joined
calls for Britain to adopt a system of presumed consent, allowing doctors
to use organs unless asked not to.
The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.
