Kipp
Palmer Memorial Golf Tournament (PA)
June 24, 2005
On July 4, 1999 our
good friend Kipp Palmer passed away from complications due to
Primary Pulmonary Hypertension. Not only was Kipp a great golfer,
but he was a fighter who, in the end, couldn't prevail over PPH.
Help us remember Kipp on June 24th while contributing to the good
cause of PPH cure research.
The California
PH Forum offers support and medical updates for patients, their
families, friends, and medical professionals interested in Pulmonary
Arterial Hypertension. It is presented in the years in between
the Pulmonary Hypertension Association's biennial international
conferences.
Kennedy
Center Evening of Music, Friendship, and PH Awareness
PHA
presented An Evening of Music, Friendship and Awareness
at the Kennedy Center in Washington, DC on June 11.
Charity Sunshine, a 21-year-old soprano and PH patient
sang a program of classical and popular music. Her grandfather,
Congressman Tom Lantos, hosted the event, and Dr. Elias
Zerhouni, Director of NIH, spoke discussing the importance
of PH research and recognizing the role of PHA.
Researchers Develop Gene Therapy To Reverse Pulmonary Arterial Hypertension
University of Alberta research team has discovered important new information they hope will lead to more effective treatments for pulmonary arterial hypertension (PAH)--a deadly form of high blood pressure in the pulmonary arteries caused by uncontrolled cell growth. Therapies are currently limited for a disease that can lead to heart failure and death within a few years.
Pulmonary
Hypertension - A Patient's Survival Guide The premiere information resource
for people dealing with PH -- they have ARRIVED and are ready to
ship!!!
The author, a PH patient herself,
knows what it is like to live with the disease. She talked to many
other patients, doctors, and researchers while writing the Survival
Guide. Dr. Ronald J. Oudiz and a team of physicians with a deep
knowledge of PH edited the book for accuracy.
New edition contains a chart
of 15 drugs used to treat PH; results of recent
clinical trials;
in-depth discussion of PH secondary to other diseases
or conditions;
a new chapter on what to eat if you have PH; and much, much more!
CoTherix
Initiates Phase II Trial for Ventavis in Expanded Indication
SOUTH SAN FRANCISCO, Calif., June 1 /PRNewswire-FirstCall/ -- CoTherix,
Inc. (Nasdaq: CTRX) announced today that it has initiated a Phase II trial for
its marketed product, Ventavis(R) (iloprost) Inhalation Solution, to
potentially expand the indication to include pulmonary hypertension (PH)
associated with idiopathic pulmonary fibrosis (IPF). Ventavis was approved by
the Food and Drug Administration in December 2004 for the treatment of
pulmonary arterial hypertension (PAH) (World Health Organization Group I) in
patients with NYHA Class III or IV symptoms.
As one of the country's longest-living survivors of primary pulmonary hypertension, a blood vessel disorder of the lungs, Morrill relies on the tiny pump and tube that snakes from the bag into her heart to deliver medicine from the cassette every 35-40 seconds.
The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.
PHA
presented An Evening of Music, Friendship and Awareness
at the Kennedy Center in Washington, DC on June 11.
Charity Sunshine, a 21-year-old soprano and PH patient
sang a program of classical and popular music. Her grandfather,
Congressman Tom Lantos, hosted the event, and Dr. Elias
Zerhouni, Director of NIH, spoke discussing the importance
of PH research and recognizing the role of PHA.
