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PHA News Archive - July 15, 2005

 vol 6, Number 14

PHA News July 15, 2005 
PHA News is an e-mail newsletter from the Pulmonary Hypertension Association covering PH related topics.

PHA News editor - Sally Maddox skmaddox@bellsouth.net
reaching over 5000 subscribers

www.phassociation.org


PHAware is Coming!

Building media attention helps educate people around the country about PH. Media attention also helps generate funds and political support for PH research. But this kind of attention can't happen without you!

If you would like to share your PH story with newspaper, television, or radio reporters in your area, please contact Katie Kroner at katherine@phassociation.org or 301-565-3004.


Topics For This Issue
Tracleer Study First Ever to Show Benefits in Eisenmenger's Syndrome
Ventavis Scrutinized for IPF-Related Pulmonary Hypertension
Use of Certain Portable Oxygen Concentrator Devices Onboard Aircraft; Final Rule

Tracleer Study First Ever to Show Benefits in Eisenmenger's Syndrome
Breathe-5 Shows that Tracleer Decreases Pulmonary Vascular Resistance and Improves Exercise Capacity in These Patients not Amenable to any Other Therapy Including Surgery

read more
(http://www.primezone.com/
newsroom/?d=81553)

Ventavis Scrutinized for IPF-Related Pulmonary Hypertension

A medication already approved as a therapy for people with pulmonary hypertension (PH) is about to enter a second round of clinical testing to determine if it's safe for those with PH related to another lung disease known as idiopathic pulmonary fibrosis, or IPF.

Read Article
(http://www.phneighborhood.com/content/in_the_news/archive_2261.aspx)

Use of Certain Portable Oxygen Concentrator Devices Onboard Aircraft; Final Rule

***DID YOU KNOW THIS***
we have been working on this one - victory

SUMMARY: This Special Federal Aviation Regulation (SFAR) will permit passengers to use certain portable oxygen concentrator (POC) devices on aircraft, provided certain conditions in this SFAR are satisfied. The SFAR includes a POC preparation requirement for carry-on baggage transport, and a battery-packaging standard necessary for the safe carriage of extra POC batteries in carry-on baggage. This rulemaking action is necessary to address the travelling needs of people on oxygen therapy.

 

Read Article
(http://a257.g.akamaitech.net/7/257/2422/01jan20051800/
edocket.access.gpo.gov/2005/05-13664.htm)

Learn about PH

Survival GuidePulmonary Hypertension - A Patient's Survival Guide
The premiere information resource for people dealing with PH -- they have ARRIVED and are ready to ship!!!

The author, a PH patient herself, knows what it is like to live with the disease. She talked to many other patients, doctors, and researchers while writing the Survival Guide. Dr. Ronald J. Oudiz and a team of physicians with a deep knowledge of PH edited the book for accuracy.

New edition contains a chart of 15 drugs used to treat PH; results of recent clinical trials; in-depth discussion of PH secondary to other diseases or conditions; a new chapter on what to eat if you have PH; and much, much more!


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