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PHA News Archive - September 9, 2005

 vol 6, Number 20

PHA News September 9, 2005 
PHA News is an e-mail newsletter from the Pulmonary Hypertension Association covering PH related topics.

PHA News editor - Sally Maddox skmaddox@bellsouth.net
reaching over 5000 subscribers

www.phassociation.org


Awareness Month:
Celebrating 15 Years of the PH Community

Each November, the PH community celebrates PH Awareness Month. This is a special time to focus our energy around raising awareness of PH and support for the PH community. This November, celebrate 15 years of ending isolation and raising awareness. Participate in one of the activities found at www.phassociation.org/ Awareness, or create your own!

For more information or to download or order an action kit, please visit www.phassociation.org/
Awareness

 


Topics For This Issue
Hot dog preservative may turn out to be a life saver
Orphan drugs moving ahead
Encysive Pharmaceuticals Presents Thelin(TM) Data at European Society of Cardiology

Hot dog preservative may turn out to be a life saver

If it works, "this drug would be pennies to dollars per day," says Dr. Christian Hunter of California's Loma Linda University. By January, Hunter hopes to begin studies of nitrite treatment for babies with an often fatal disease called pulmonary hypertension.

Read story
(http://www.canada.com/edmonton/
edmontonjournal/news/bodyandhealth/
story.html?id=e9ea61a8-1ca3-43ce-9c12-88b8db29afc9 )


 
New Clinical Trials online at
http://www.phassociation.org/
Clinical_Trials

 

 

Orphan drugs moving ahead

Focus: Their development is a fast-growing segment of the pharmaceutical industry.

When Maryland entrepreneur and author Martine Rothblatt learned in 1991 that her daughter, then 8, had a deadly lung disease, the news was made much worse by another discovery: No one seemed interested in developing a drug to treat it.

Read Article
(http://www.baltimoresun.com/business/bal-bz.orphan28aug28,1,7361936.story?coll=bal-business-headlines&ctrack=1&cset=true)

Learn about PH

Survival GuidePulmonary Hypertension - A Patient's Survival Guide
The premiere information resource for people dealing with PH -- they have ARRIVED and are ready to ship!!!

The author, a PH patient herself, knows what it is like to live with the disease. She talked to many other patients, doctors, and researchers while writing the Survival Guide. Dr. Ronald J. Oudiz and a team of physicians with a deep knowledge of PH edited the book for accuracy.

New edition contains a chart of 15 drugs used to treat PH; results of recent clinical trials; in-depth discussion of PH secondary to other diseases or conditions; a new chapter on what to eat if you have PH; and much, much more!

Encysive Pharmaceuticals Presents Thelin(TM) Data at European Society of Cardiology

HOUSTON, Sept. 6 /PRNewswire-FirstCall/ -- Encysive Pharmaceuticals (Nasdaq: ENCY) today announced data presentations of Thelin(TM) (sitaxsentan) from the Company's STRIDE clinical trials in pulmonary arterial hypertension (PAH) at the European Society of Cardiology (ESC) 2005 Congress, September 3-7 in Stockholm, Sweden.

Read Article
(http://www.prnewswire.com/cgi-bin/stories.pl?ACCT=104&STORY=/www/story/09-06-2005/0004100364&EDATE=)

PHA Regional Medical and
Patient Education Sessions

Medical Education - Shining the Light 
Shedding Light on
Pulmonary Arterial Hypertension:
The Journey Toward a Brighter Future

More info at: www.phassociation.org/medicaleducation/

For Medical Professionals:
With the advent of new PH drugs and treatments, more and more doctors are becoming increasingly involved in the PH community. PHA has responded to this, and will bring together world-renowned leading PH specialists to lead Medical Education Sessions for their peers during the fall in six cities: New York; Atlanta; Chicago; Seattle; Dallas; and Washington, DC.

Physicians who participate are eligible to receive CME credits. Educational credits will also be available for nurses and pharmacists.
 

YOU MUST REGISTER as SPACES WILL FILL UP!

Register online at www.phassociation.org/
medicaleducation/regis.asp

For more information on courses, specific dates, locations, and a preliminary schedule, visit www.phassociation.org/
medicaleducation
.

For questions or to register by phone, please call 858-717-2940.

 

For Patients:
While we are bringing together leading specialists and interested medical professionals for the Medical Education Sessions, we know that patients will also greatly benefit from these gatherings. We are therefore very excited to announce PHA's Regional Patient Education Sessions.
Many of the medical professionals presenting earlier during the day will stay for the evening's PHA Regional Patient Education Session to participate in a dinner, educational slide-show and panel discussion of current advances in PH. Kim Bernstein, director of ACCESS, will also be at each session, presenting on insurance issues and how to use her program as an important resource.

Partnering with Actelion and Accredo Therapeutics we are able to allow a free ticket to each patient and one guest (a $50 value), up to the first 200 registrants. This includes dinner and the presentations. Any additional guests or registrations after the first 200, will need to purchase a ticket at $25. PH patients with Scleroderma are also invited to attend a Scleroderma Support Group meeting taking place earlier in the day.

PHA thanks Actelion, our primary sponsor, and Accredo Therapeutics for their generous support of this program.


Better Business Bureau Accredited Charity bbb.org/charity Charity Navigator 4 Star Charity Rating best in america seal


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Questions about the site? email web@PHAssociation.org

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