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PHA News Archive - October 7, 2005

 vol 6, Number 22

PHA News October 7, 2005 
PHA News is an e-mail newsletter from the Pulmonary Hypertension Association covering PH related topics.

PHA News editor - Sally Maddox skmaddox@bellsouth.net
reaching over 5000 subscribers

www.phassociation.org


PHA T-Shirt Design Contest: Calling all artists!

We're launching our first official organizational t-shirt in time for Awareness Month. To mark the occasion, we want to invite you-our members, family and friends-to have your hand in the creation of the new shirt design!

We're looking for a design that incorporates our logo and color scheme. Artists can also create catch-phrases or slogans both new and old (i.e. "the other high blood pressure"). Winner will receive a free organizational t-shirt in their size and a mention on our website and online and print newsletters. The contest closes on October 31, 2005 by Midnight EST. Any entries
received after this date will not be qualified.

see rules, guidelines
and entry details

 


Topics For This Issue
Mixed Reviews for Pulmonary Artery Catheters
Vandy patient brings laughter into ICU while awaiting transplant
Respironics Receives 510(k) Clearance From FDA for I-neb(TM) AAD(R) System
Cancer Drug Might Fight Lethal Lung Hypertension

Mixed Reviews for Pulmonary Artery Catheters

TUESDAY, Oct. 4 (HealthDay News) -- Two studies find that the pulmonary artery catheters used to monitor the condition of critically ill heart patients do no harm but don't improve outcomes.

Yet the senior authors of both reports in the Oct. 5 issue of the Journal of the American Medical Association said they see good reason for using the catheters in many cases.

Read story
(http://www.forbes.com/lifestyle/
health/feeds/hscout/2005/
10/04/hscout528315.html)

 

Vandy patient brings laughter into ICU while awaiting transplant

Her fun-loving attitude camouflages the very serious battle she's fighting. She's been diagnosed with primary pulmonary hypertension. The disease, also called PPH, affects the small blood vessels in the lungs, leading to heart failure. Only one or two people in a million get it, unless you're in Sierra's family.

Read Article
(http://www.wkrn.com/Global/story.asp?S=3912264&nav=1ugO)

Learn about PH

Survival GuidePulmonary Hypertension - A Patient's Survival Guide
The premiere information resource for people dealing with PH -- they have ARRIVED and are ready to ship!!!

The author, a PH patient herself, knows what it is like to live with the disease. She talked to many other patients, doctors, and researchers while writing the Survival Guide. Dr. Ronald J. Oudiz and a team of physicians with a deep knowledge of PH edited the book for accuracy.

New edition contains a chart of 15 drugs used to treat PH; results of recent clinical trials; in-depth discussion of PH secondary to other diseases or conditions; a new chapter on what to eat if you have PH; and much, much more!

Respironics Receives 510(k) Clearance From FDA for I-neb(TM) AAD(R) System

MURRYSVILLE, Pa., Sept. 28 /PRNewswire-FirstCall/ -- Respironics, Inc. (Nasdaq: RESP) announced today the U.S. Food and Drug Administration (FDA) granted 510(k) clearance of the I-neb Adaptive Aerosol Delivery (AAD) System for the aerosolization of liquid medication approved for use with the I-neb AAD System. The device is cleared for use by the patient in the home care, nursing home, sub-acute institution, or hospital environment.

Read Article
(http://www.prnewswire.com/cgi-bin/stories.pl?ACCT=104&STORY=/www/story/09-28-2005/0004134184&EDATE= )

Cancer Drug Might Fight Lethal Lung Hypertension

WEDNESDAY, Sept. 28 (HealthDay News) -- Gleevec, a medication experts have hailed as a wonder drug in the fight against certain cancers, may also come to the rescue of patients battling lethal pulmonary hypertension.

Read Article
(http://www.forbes.com/lifestyle/health/feeds/hscout/
2005/09/28/hscout528219.html)

PHA Regional Medical and
Patient Education Sessions

Medical Education - Shining the Light 
Shedding Light on
Pulmonary Arterial Hypertension:
The Journey Toward a Brighter Future

More info at: www.phassociation.org/medicaleducation/

For Medical Professionals:
With the advent of new PH drugs and treatments, more and more doctors are becoming increasingly involved in the PH community. PHA has responded to this, and will bring together world-renowned leading PH specialists to lead Medical Education Sessions for their peers during the fall in six cities: New York; Atlanta; Chicago; Seattle; Dallas; and Washington, DC.

Physicians who participate are eligible to receive CME credits. Educational credits will also be available for nurses and pharmacists.
 

YOU MUST REGISTER as SPACES WILL FILL UP!

Register online at www.phassociation.org/
medicaleducation/regis.asp

For more information on courses, specific dates, locations, and a preliminary schedule, visit www.phassociation.org/
medicaleducation
.

For questions or to register by phone, please call 858-717-2940.

 

For Patients:
While we are bringing together leading specialists and interested medical professionals for the Medical Education Sessions, we know that patients will also greatly benefit from these gatherings. We are therefore very excited to announce PHA's Regional Patient Education Sessions.
Many of the medical professionals presenting earlier during the day will stay for the evening's PHA Regional Patient Education Session to participate in a dinner, educational slide-show and panel discussion of current advances in PH. Kim Bernstein, director of ACCESS, will also be at each session, presenting on insurance issues and how to use her program as an important resource.

Partnering with Actelion and Accredo Therapeutics we are able to allow a free ticket to each patient and one guest (a $50 value), up to the first 200 registrants. This includes dinner and the presentations. Any additional guests or registrations after the first 200, will need to purchase a ticket at $25. PH patients with Scleroderma are also invited to attend a Scleroderma Support Group meeting taking place earlier in the day.

PHA thanks Actelion, our primary sponsor, and Accredo Therapeutics for their generous support of this program.


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