PHAnews is meant to give a picture
of recent events
and activities affecting the life of the PH community.
This compilation should not be viewed as endorsement
of the information provided or its accuracy.
Awareness
Month:
Celebrating 15 Years of the PH Community
Each November, the PH community
celebrates PH Awareness Month. This is a special
time to focus our energy around raising awareness
of PH and support for the PH community. This November,
celebrate 15 years of ending isolation and raising
awareness. Participate in one of the activities
found at www.phassociation.org/
Awareness, or create your own!
Drug May Ease Pulmonary Hypertension;
Revatio Has the Same Active Ingredient as Viagra
A drug called Revatio may help treat an aggressive condition called pulmonary arterial hypertension.
Patients with pulmonary hypertension
have elevated blood pressure in the pulmonary (lung)
blood vessels. The condition often arises from lung
problems, but some cases are without a known cause.
It can result in heart failure and early death.
Pulmonary
Hypertension - A Patient's Survival Guide The premiere information
resource for people dealing with PH -- they have ARRIVED
and are ready to ship!!!
The author, a PH patient
herself, knows what it is like to live with the disease.
She talked to many other patients, doctors, and researchers
while writing the Survival Guide. Dr. Ronald J. Oudiz
and a team of physicians with a deep knowledge of
PH edited the book for accuracy.
New edition contains
a chart of 15 drugs used to treat
PH; results of recent clinical trials;
in-depth discussion of PH secondary to other
diseases or conditions; a new chapter on
what to eat if you have PH; and much,
much more!
Harris Interactive, an independent
research firm best known for the Harris Poll®, is conducting
a survey of patients with pulmonary arterial hypertension,
or PAH. The survey will address several topics related to
experiences with pulmonary arterial hypertension. If you have
been diagnosed with pulmonary arterial hypertension and would
like to participate in this study, please use the following
URL to access the survey on the Internet: http://go.hpolsurveys.com/PAHsurvey.
If you qualify and complete the entire survey, you will receive
a $50 cash incentive for your participation. As with all Harris
surveys, your responses will be kept strictly confidential
and reported in the aggregate only.
If you have any questions about the study, please call
David Spears at (800) 866-7655, extension 6624.
First ever placebo-controlled trial to show benefits in Eisenmenger’s syndrome presented at CHEST
BREATHE-5 study showed that Tracleer® improved exercise capacity and decreased pulmonary vascular resistance in these patients not amenable to any other therapy, including surgery
The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.
