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PHA News Archive - December 16, 2005

 vol 6, Number 24

PHA News December 16, 2005 
PHA News is an e-mail newsletter from the Pulmonary Hypertension Association covering PH related topics.

PHA News editor - Sally Maddox skmaddox@bellsouth.net
reaching over 5000 subscribers

www.phassociation.org

PHAnews is meant to give a picture of recent events
and activities affecting the life of the PH community.
This compilation should not be viewed as endorsement
of the information provided or its accuracy.


Medicare Part D Presentation

This presentation addresses questions about enrollment, cost, choosing a plan and much more. It is intended for both medical professionals AND patients.

To view the presentation, please visit the insurance part of the PHA website at www.phassociation.org/insurance/


Topics For This Issue
Pulmonary Hypertension May Indicate Hemoglobinuria: Presented at ASH
Myogen Announces Achievement of Target Enrollment for Pivotal Phase 3 ARIES-1 Trial of Ambrisentan in PAH
CoTherix and Respironics Announce Launch of New Portable Inhalation Device to Ventavis Patients
Congress hears appeals for more research on two health problems

Pulmonary Hypertension May Indicate Hemoglobinuria: Presented at ASH

ATLANTA, GA -- December 15, 2005 -- A new study shows that pulmonary arterial hypertension (PHT) may be a common condition in patients with paroxysmal nocturnal hemoglobinuria (PNH).

 

Read story
(http://www.docguide.com/news/
content.nsf/news/
8525697700573E18852570D800607579)

Myogen Announces Achievement of Target Enrollment for Pivotal Phase 3 ARIES-1 Trial of Ambrisentan in PAH

DENVER, Nov. 10 /PRNewswire-FirstCall/ -- Myogen, Inc. (Nasdaq: MYOG), a biopharmaceutical company focused on the discovery, development and commercialization of small molecule therapeutics for the treatment of cardiovascular disorders, today announced the achievement of target enrollment of 186 patients in ARIES-1, one of the Company's two pivotal Phase 3 trials of ambrisentan in patients with pulmonary arterial hypertension (PAH). A number of additional patients are in screening and the Company will allow those patients to complete the process and either be randomized into the trial or disqualified, in accordance with the trial protocol. The Company expects to report top line results of the trial in the second quarter of 2006. In addition, as previously announced, the Company expects to report top line results of ARIES-2, the other pivotal Phase 3 trial of ambrisentan in PAH, in December of this year.

Read Article
(http://investor.myogen.com/phoenix.zhtml?c=135160&p=irol-newsArticle&ID=781654&highlight=)

Learn about PH

Survival GuidePulmonary Hypertension - A Patient's Survival Guide
The premiere information resource for people dealing with PH -- they have ARRIVED and are ready to ship!!!

The author, a PH patient herself, knows what it is like to live with the disease. She talked to many other patients, doctors, and researchers while writing the Survival Guide. Dr. Ronald J. Oudiz and a team of physicians with a deep knowledge of PH edited the book for accuracy.

New edition contains a chart of 15 drugs used to treat PH; results of recent clinical trials; in-depth discussion of PH secondary to other diseases or conditions; a new chapter on what to eat if you have PH; and much, much more!

CoTherix and Respironics Announce Launch of New Portable Inhalation Device to Ventavis Patients

SOUTH SAN FRANCISCO, Calif. and MURRYSVILLE, Pa., Dec. 13 /PRNewswire-FirstCall/ -- CoTherix, Inc. (NASDAQ: CTRX) and Respironics, Inc. (NASDAQ: RESP) announced today the launch of a new portable, battery-operated inhalation device for the delivery of Ventavis(R) (iloprost) Inhalation Solution. The new I-neb(TM) Adaptive Aerosol Delivery(R) (AAD) device weighs less than eight ounces and can be carried discreetly in a purse, pocket or briefcase. Ventavis is indicated for the treatment of pulmonary arterial hypertension (PAH), World Health Organization Group I, in patients with New York Heart Association (NYHA) Class III or IV symptoms.

Read Article
(http://sev.prnewswire.com/medical-pharmaceuticals/20051213/SFTU05013122005-1.html)

Congress hears appeals for more research on two health problems

CAPITOL HILL Pulmonary hypertension isn't high blood pressure.

Instead, the usually fatal condition involves the inability of the heart to circulate blood through the lungs, making them increasingly ineffective.

Read Article
(http://www.zwire.com/site/news.cfm?
newsid=15622298&BRD=1644&PAG=461&dept_id=10660&rfi=6)

Read the PHA write-up and view testimonies
http://phassociation.org/advocacy/progress.asp

Congratulations to our T-Shirt Contest Winner!

Survival GuidePHA received an overwhelming number of submissions from the PH community for our first organizational t-shirt design contest. It was a very hard decision to make, but we are proud to announce the winning design for our first t-shirt.

The design was put together by Heather Koczur. Heather has been a volunteer with PHA for a while now, participating in our local volunteer night, raising awareness by racing marathons, and advocating for PH on the Hill at our congressional lobby days, briefings and hearings. She is also active in our message boards online and participates in her local Northern Virginia Support Group meetings. Heather's design was based off of a volunteer assignment she created for our Awareness posters.

We would also like to honor Vic Cherubini's contribution to the contest. His catchphrase from his design, "Keep our Flame of Hope Burning Brightly" was incorporated into her work.

We thank all participants for their submissions.

T-shirts will be available for sale early next year. Check back online often!


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