PHAnews is meant to give a picture
of recent events
and activities affecting the life of the PH community.
This compilation should not be viewed as endorsement
of the information provided or its accuracy.
This is a great opportunity for you to meet others in the PH community, from physicians and nurses to patients and caregivers. We have a number of exciting opportunities to learn, network, and have fun. Some returning favorites are Ask the Physician, Living with a Chronic Illness, support group sessions broken out by interests, doctors updating on new treatments on the horizon, and Scientific Sessions for medical professionals.
PH Awareness Rockin' for the Cure Concert a Huge Success
The Pulmonary Hypertension Association and the Embassy of Hungary hosted a PH awareness event as part of PHA's Faces of PH campaign. The Rockin' for the Cure rock concert featured PH patient Charity Sunshine Tillemann-Dick and the band The Coalition of the Willing. The concert, held at the 9:30 Club, one of Washington, DC's premier rock venues, brought out approximately 800 people and raised gross revenues of $65,000 for pulmonary hypertension.
Encysive Pharmaceuticals Inc.'s drug Thelin is "approvable" for treating a rare, often-fatal lung condition, a U.S. Food and Drug Administration (FDA) spokeswoman said. The FDA sent an "approvable letter" to the company saying Thelin could be approved if certain conditions were met, FDA spokeswoman Susan Cruzan said. She did not disclose the conditions.
United Therapeutics said it has been OK'd on a study needed for accelerated approval of hypertension drug Remodulin. The company also said it has also been granted expanded labeling for its treprostinil sodium injection, indicated for the treatment of pulmonary arterial hypertension.
Pulmonary
Hypertension - A Patient's Survival Guide The premiere information
resource for people dealing with PH
The author, a PH patient
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She talked to many other patients, doctors, and researchers
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PH edited the book for accuracy.
New edition contains
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in-depth discussion of PH secondary to other
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The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.
The Pulmonary Hypertension Association and the Embassy of Hungary hosted a PH awareness event as part of PHA's Faces of PH campaign. The Rockin' for the Cure rock concert featured PH patient Charity Sunshine Tillemann-Dick and the band The Coalition of the Willing. The concert, held at the 9:30 Club, one of Washington, DC's premier rock venues, brought out approximately 800 people and raised gross revenues of $65,000 for pulmonary hypertension.
