PHAnews is meant to give a picture
of recent events
and activities affecting the life of the PH community.
This compilation should not be viewed as endorsement
of the information provided or its accuracy.
Topics
For This Issue
TAKE ACTION
--Urge the House of Representatives to Support Health and Education Funding in the FY 2007 House Budget Resolution
CONFERENCE ANNOUNCEMENTS
--Early Bird Discount Extended to April 15
--Award Nomination Deadline Extended to April 16
--Scholarship Application Deadline Extended to April 16
NEWS
--PHA Board Chair Jack Stibbs Testifies Before Congress with Daughter, PH Patient Emily
--Hormone Can Predict Pulmonary Hypertension, Risk of Death
--Promising Evidence of New Drug Therapies in Lethal Lung Disease
--Encysive misses FDA drug approval by a heartbeat
ANNOUNCEMENTS
--PHA T-shirts and Baseball Caps Available Online
--Department of Defense Peer Review Medical Research Program Letter of Intent Deadline April 10
--Interactive PH Diagnosis CD Available Online
TAKE ACTION
Urge the House of Representatives to Support Health and Education Funding in the FY 2007 House Budget Resolution
This April, the House of Representatives is considering of the Fiscal Year 2007 House Budget Resolution. During consideration on the floor, Congressman Michael Castle (R-DE) is planning to offer an amendment that would add $7 billion for discretionary health and education programs, as Senators Specter (R-PA) and Harkin (D-IA) were successful in accomplishing during consideration of the Senate Budget Resolution.
Contact your House member and urge him or her to support the Castle amendment to add $7 billion to the Fiscal Year 2007 House Budget Resolution.
Because so many of you asked...
--Early Bird Discount Extended to April 15
--Award Nomination Deadline Extended to April 16
--Scholarship Application Deadline Extended to April 16
300 of you have registered so far -- 1000 are expected. We have a great lineup of expert PH doctors and patient presenters for workshops ranging from the latest in treatments to living with a chronic illness. Support groups sessions offer the unique opportunity to participate in specialized topic support group sessions. Scientific Sessions returns for medical professionals and we have a full international program for the PH community from other countries, including an international booth row. Don't miss this opportunity.
PHA Board Chair Jack Stibbs Testifies Before Congress with Daughter, PH Patient Emily
PHA Board Chair, Jack Stibbs, and his 13 year-old daughter, Emily, testified before the House Labor-HHS Appropriations Subcommittee. Jack and Emily shared their family's story with the U.S. representatives present. View pictures and read the story, Jack's testimony, and local news coverage.
http://www.phassociation.org/advocacy/
cong_testify_032906.asp
Promising Evidence of New Drug Therapies in Lethal Lung Disease
Several promising new treatments may prolong lives as well as improve the quality of life for people living with pulmonary arterial hypertension. Research showing benefits of these novel drug therapies for lethal lung disease will be discussed today at the 26th Annual Meeting and Scientific Sessions of the International Society for Heart and Lung Transplantation (ISHLT).
http://www.emaxhealth.com/39/5416.html
Encysive Misses FDA Drug Approval by a Heartbeat
On March 24, the FDA dealt Encysive a blow when it sent the Houston-based biopharmaceutical company an "approvable" letter containing concerns and observations that must be satisfied before the drug can be given the green light. The federal agency also requested additional clinical trial work related to Thelin.
http://houston.bizjournals.com/houston/stories/2006/04/03/story4.html
Interactive PH Diagnosis CD Available Online
An interactive cd-rom for medical professionals that will aid in diagnosis of pulmonary hypertension. This companion piece to the Fall issue of Advances in Pulmonary Hypertension assists with diagnosis of pulmonary hypertension and is an invaluable resource for medical professionals in pulmonology, cardiology, rheumatology, and primary care.
http://www.gifttool.com/shop/ShopProductDetails?ID=
123&VER=1&LNG=EN&PID=20747&DID=512
The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.
Urge the House of Representatives to Support Health and Education Funding in the FY 2007 House Budget Resolution
Because so many of you asked...
PHA Board Chair Jack Stibbs Testifies Before Congress with Daughter, PH Patient Emily 
PHA T-shirts and Baseball Caps Available Online 
