PHA News Archive - June 5, 2006

Vol 7, Number 11		June 5, 2006
PHA News is an e-mail newsletter from the Pulmonary Hypertension Association covering PH related topics.

PHA News editor - Sally Maddox skmaddox@bellsouth.net
reaching over 5000 subscribers

www.phassociation.org

PHAnews is meant to give a picture of recent events
and activities affecting the life of the PH community.
This compilation should not be viewed as endorsement
of the information provided or its accuracy.

		Topics For This Issue
	CONFERENCE ANNOUNCEMENTS --Pre-Registration Deadline June 14 --Conference Programs Now Available --Registration of Children and Teens --Hotel Options in Minneapolis NEWS --Late Ambulance Costs Woman Transplant --Ambrisentan Phase 3 ARIES-2 PAH Data Presented At ATS 2006 --Sitaxsentan Improves Quality Of Life In Pulmonary Hypertension --First Study of Its Kind Tests Drug for Pulmonary Hypertension in Sickle Cell Disease Patients ANNOUNCEMENTS --ATS/PHA Research Grant Letter of Intent Due June 19 --$1000 Seed Grants to New PHA Fundraisers

CONFERENCE ANNOUNCEMENTS

Pre-Registration Deadline June 14 $25 fee for On-Site Registration Conference pre-registration ends June 14. We will not be able to process any registrations we receive after that date in order to prepare registration packets in time for conference. Anyone wishing to register after June 14 can register on-site at the conference, but will incur a $25 processing fee. Get the lower rate now! Register today!http://www.phassociation.org/Conference/2006/ Registration.asp Conference Programs Now Available See what’s in store for the conference agenda. View the general conference program: http://www.phassociation.org/Conference/2006/Agenda.asp View the Scientific Sessions program: http://www.phassociation.org/Conference/2006/Scientific-Sessions.asp Registration of Children and Teens Contact Parent Coordinator to Help Ensure Adequate Resources for Children Laurie Jeter, our PHA Parent Coordinator, is working to acquire the resources we need for children and teens at conference.  If you have a child ages 3-12 or teen ages 13-18 attending conference who will be participating in the children and teens activities, please contact Laurie at mjeterl@aol.com or 952-380-4999 with your children’s names, ages, and if they will be participating in the Saturday outing to the science center.  Please help us prepare enough resources for your children by contacting her by Monday, June 12.  Laurie has a lot of fun and exciting activities planned.  To learn more on children’s activities at conference, check out page 9 of the conference program available at http://www.phassociation.org/Conference/2006/Agenda.asp. Hotel Options in Minneapolis Along with blockbuster participation in PHA's conference in Minneapolis, a number of other groups are meeting there at the same time, making hotel rooms scarce. We have just learned that one of our alternate hotels, the Doubletree Guest Suites, is completely booked over the weekend of our conference. Based on our research (and things are changing quickly) rooms are available for the nights of June 23 and 24 at the Courtyard Minneapolis Downtown at the Depot, which is located 0.7 miles from our host hotel, the Hilton Minneapolis. To reserve a room at the Courtyard, call 800-321-2211 or 612-375-1700 or go to www.marriott.com. You may also want to try some of the online travel sites (such as hotels.com, Expedia.com, Travelocity.com) as there may be access to hotel rooms through them. If you are a scholarship recipient, please note that PHA is taking care of your hotel reservations and will be in touch with you in that regard. The information above does not apply to you. PH patients having trouble getting a room at the conference hotel, the Hilton Minneapolis Hotel, can email Kim Thompson at Kim@PHAssociation.org to be placed on the waiting list. Be sure to provide your name, phone number, and which nights you need a room. However, you should still book a room at an alternate hotel as we cannot guarantee that you will be able to get a room at the Hilton Minneapolis. We are sorry for any inconvenience and we certainly want to welcome all interested participants to the conference.

NEWS

Late Ambulance Costs Woman Transplant Disabled woman missed out on a double lung transplant operation after an ambulance allegedly "got lost" - and then had to stop for fuel. Yvonne Crozier, 39, has been on the waiting list for a life-changing transplant operation for more than a year. But by the time she reached the hospital an hour late, the donor lungs had been given to someone else. http://icwales.icnetwork.co.uk/0100news/0200wales/tm_objectid= 17105517&method=full&siteid=50082&headline=woman-lost-chance-of-lungs-transplant-as-- ambulance-arrived-late----name_page.html Ambrisentan Phase 3 ARIES-2 PAH Data Presented At ATS 2006 Myogen, Inc. (Nasdaq: MYOG), a biopharmaceutical company focused on the discovery, development and commercialization of small molecule therapeutics for the treatment of cardiovascular disorders, today announced that a scientific presentation describing the effects of ambrisentan in patients with pulmonary arterial hypertension (PAH) was given at ATS 2006 -- San Diego, the annual International Conference of the American Thoracic Society. http://www.medadnews.com/News/Index.cfm?articleid=343750 Sitaxsentan Improves Quality Of Life In Pulmonary Hypertension Researchers have documented an improved quality of life in patients with pulmonary arterial hypertension (PAH) who are treated with the investigational agent sitaxsentan. http://www.medicalnewstoday.com/healthnews.php?newsid=44104 First Study of Its Kind Tests Drug for Pulmonary Hypertension in Sickle Cell Disease Patients Saint Louis University researchers are recruiting volunteers who have both sickle cell disease and pulmonary hypertension to test the safety and effectiveness of a medicine already approved by the FDA to treat pulmonary arterial hypertension alone. http://www.slu.edu/readstory/more/6940

ANNOUNCEMENTS
	ATS/PHA Research Grant Letter of Intent Due June 19 Apply for PH research funding today! http://www.phassociation.org/support/ATSfund.asp $1000 Seed Grants to New PHA Fundraisers PHA is opening up our Seed Grant Program to the general PHA community! Interested in putting on a PH fundraiser but don't have the start-up funds? Well, PHA wants to help! http://www.phassociation.org/Awareness/grant.asp

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