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PHA News Archive - October 16, 2006

Vol 7, Number 19

PHA News October 16, 2006 
PHA News is an e-mail newsletter from the Pulmonary Hypertension Association covering PH related topics.

PHA News Editor - Sally Maddox skmaddox@bellsouth.net
Contributing Editors - PHA staff
reaching over 5000 subscribers
www.PHAssociation.org

PHA News is meant to give a picture of recent events and activities affecting the life
of the PH community. This compilation should not be viewed as endorsement of the
information provided or its accuracy.
Topics For This Issue
PH CONGRESSIONAL LUNCHEON
--Whether or not you live in the DC metropolitan area, we need your help to make this year's Luncheon a success.
TAKE ACTION: HELP IMPROVE MEDICARE COVERAGE FOR PH PATIENTS
--Medigap bill would require states to offer Medigap policies to disabled recipients regardless of their age.

LAST 2 FREE REGIONAL MEDICAL EDUCATION SESSIONS NOV 4!
for Medical Professionals, Patients, and Families
--Philadelphia (PA), Houston (TX)

PH Awareness Month Campaign Highlight
COMFORT FOR A CAUSE: BLUE JEANS FOR PH
--Wear your blue jeans at work while raising awareness and funds for PH.
NIH PH CONFERENCE ABSTRACT DEADLINE EXTENDED TO OCT 20
--AMA PRA Category 1 credits will be available

NEWS
--Down's Syndrome Newborns Show Higher Incidence of Idiopathic Persistent Pulmonary Hypertension: Presented at AAP
--Pulmonary Hypertension Gets a Closer Look
--Results Of Inhaled Treprostinil Study Reported In The Journal Of The American College Of Cardiology
--Four Ambrisentan Studies to Be Presented at Chest 2006

ANNOUNCEMENTS
--Raise Awareness with a Magnetic Car Ribbon

Please Support PHA in the Combined Federal Campaign
CFC logo
PHA is #0212

PH CONGRESSIONAL LUNCHEON

Whether or not you live in the DC metropolitan area, we need your help to make this year's Luncheon a success. PHA's 3rd Annual Congressional Luncheon will take place on November 15 during PH Awareness Month. You can help us by inviting your Members of Congress, attending the event, and inviting your families and friends.

Learn more about how you can help

TAKE ACTION: HELP IMPROVE MEDICARE COVERAGE FOR PH PATIENTS

US CapitolSupport Medigap bill that would require states to offer Medigap policies to disabled recipients regardless of their age.

Contact your Representative today to help improve Medicare Coverage for PH patients


LAST 2 FREE REGIONAL MEDICAL EDUCATION SESSIONS NOV 4!
PHA Conference

for Medical Professionals, Patients, and Families

Sponsored by the Pulmonary Hypertension Association and the Univerity of Michigan Medical School

Saturday, November 4, 2006
8:00am - 3:15pm
Hilton Philadelphia City Avenue
Philadelphia, PA

Vallerie McLaughlin, MD, Program Chair
Michael Landzberg, MD
Harold Palevsky, MD
Terence Trow, MD
William Robiner, PhD, ABPP, LP
Carl Hicks, PHA Vice Chair

Saturday, November 4, 2006
8:00am - 3:15pm
Hyatt Regency Houston
Houston, TX

Adaani Frost, MD, Program Chair
Wayne Franklin, MD
Fernando Torres, MD
Ben deBoisblanc, MD, FACP, FCCP, FCCM
Roberta Diddel, PhD
Jack Stibbs, PHA Immediate Chair

Learn more and register today!

PH Awareness Month Campaign Highlight
COMFORT FOR A CAUSE: BLUE JEANS FOR PH

Blue Jeans for PH logoWear your blue jeans at work while raising awareness and funds for PH.

Think of the things $5 can do. It can buy lunch or dessert, it can pay for your parking, it can even buy you two gallons of gas, but did you know it can help improve the lives of those with PH? Blue Jeans for PH is a fun way of spreading the word about PH at work while giving your co-workers the chance to wear jeans for a day. Employees pay a designated amount (usually $5) and are allowed to wear blue jeans to work for the day.

PHA has everything you need to host a successful Blue Jeans for PH day. We can email you our electronic kit which includes fliers to hang, a checklist of what to do, mailbox stuffers, a frequently asked questions page, stickers and more! Contact giving@PHAssociation.org for this kit or to learn more!

That $5 your co-workers found in their pockets yesterday can do so much more for PHA. Learn more and get involved!

NIH PH CONFERENCE ABSTRACT DEADLINE EXTENDED TO OCT 20

The PH Conference hosted by the National Institutions of Health titled "Evolution of Pulmonary Hypertension: Emerging Diseases and Novel Therapeutics Meeting" is fast approaching! AMA PRA Category 1 credits will be available. The meeting will be held on December 7-8, 2006 in Bethesda, MD.

The call for abstracts deadline has been extended to: October 20, 2006. Abstract submission details

Register for the conference today

NEWS

Down's Syndrome Newborns Show Higher Incidence of Idiopathic Persistent Pulmonary Hypertension: Presented at AAP
There is a higher incidence of idiopathic persistent pulmonary hypertension of the newborn (PPHN) among newborns with Down's syndrome (DS) compared with other newborns. Read article

Pulmonary Hypertension Gets a Closer Look
(News coverage of Pittsburgh Medical Education Session) Six years ago, when she traveled to Pittsburgh from her home in Mexico, Rebeca Dosal found that a medication was available to treat her pulmonary arterial hypertension. Read article

Results Of Inhaled Treprostinil Study Reported In The Journal Of The American College Of Cardiology
Lung Rx, Inc. announced the publication of "Safety and Efficacy of Inhaled Treprostinil as Add-On Therapy to Bosentan in Pulmonary Arterial Hypertension" in the current issue of The Journal of The American College of Cardiology (October 3, 2006, volume 48, number 7, pp. 1433-1437). Read article

Four Ambrisentan Studies to Be Presented at Chest 2006
Myogen, Inc. announced that four abstracts describing the effects of ambrisentan in patients with pulmonary arterial hypertension (PAH) and healthy volunteers have been selected for presentation at CHEST 2006, the scientific assembly of the American College of Chest Physicians (ACCP), to be held Oct. 21-26. Myogen expects to submit the ambrisentan New Drug Application to the FDA in the fourth quarter of 2006. Read article

ANNOUNCEMENTS

PH magnetic car ribbonRaise Awareness with a Magnetic Car Ribbon
November is PH Awareness Month. Help raise awareness about PH with a PH periwinkle magnetic ribbon on your car. Car ribbons have become a popular way to raise awareness about diseases in communities. We now have a magnet that is larger and more durable!

Buy your PH car ribbon


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