PHA News is meant to give a picture of recent events and activities affecting the life
of the PH community. This compilation should not be viewed as endorsement of the
information provided or its accuracy.
NEWS
--CU-Boulder Bioengineering Research Targets Pulmonary Hypertension in Children
--Transplant Survivor Cherishing Gift 21 Years Later
--Heart to Heart: November is Pulmonary Hypertension (PH) Awareness Month
ANNOUNCEMENTS
--Pathlight: Winter Issue Submission Deadline & Fall Issue Printing Error
--Summer Issue of Advances in PH, the PH Medical Journal, Available Online
--Number of Sites Linking to PHAssociation.org is Over 45,000
--Raise Awareness with a PH Pin - PH Heart, PH Ribbon, or PHA Logo
PH Awareness Month Campaign Highlight
FACES OF PH PUBLIC AWARENESS CAMPAIGN GENERATES NATIONAL MEDIA ATTENTION
Faces of PH is a national public awareness campaign to raise the profile of pulmonary hypertension. The campaign's goal is to garner media coverage of a PH patient and his/her PH doctor in 10 major U.S. cities: Boston, MA; Chicago, IL; Denver, CO; Detroit, MI; Houston, TX; New York, NY; Philadelphia, PA; San Diego, CA; San Francisco, CA; and Washington, DC. The campaign's national spokesperson is Charity Sunshine Tillemann-Dick (right), the granddaughter of Congressman Tom Lantos (CA).
Use your PH story to gain media attention where you live with our easy to use tools and support through our PHAware Campaign. Contact Dayle at 301-565-3004 x113 or Dayle@PHAssociation.org.
Learn more about PHAware
PH CONGRESSIONAL LUNCHEON NOV 15
Whether or not you live in the DC metropolitan area, we need your help to make this year's Luncheon a success.
PHA's 3rd Annual Congressional Luncheon will take place on November 15 during PH Awareness Month. If you or someone you know will be in the DC area, you can help us by attending the event and inviting your families and friends.
We also need the PH community throughout the nation to invite their Members of Congress. The Congressional Luncheon is an opportunity to educate Members of Congress about the PH Research Act and increase support and funding for PH research. Please invite your Senators and Representative to this important event. Also consider joining our 435 Campaign so your Members are sure to hear about PH throughout the year.
RSVP for the Luncheon or learn more about the 435 Campaign by contacting Katie at 301-565-3004 x109 or Katie@PHAssociation.org.
LAST 2 FREE REGIONAL MEDICAL EDUCATION SESSIONS THIS SATURDAY!
for Medical Professionals, Patients, and Families
Sponsored by the Pulmonary Hypertension Association and the Univerity of Michigan Medical School
Saturday, November 4, 2006
8:00am - 3:15pm
Hilton Philadelphia City Avenue
Philadelphia, PA
Vallerie McLaughlin, MD, Program Chair
Michael Landzberg, MD
Harold Palevsky, MD
Terence Trow, MD
William Robiner, PhD, ABPP, LP
Carl Hicks, PHA Vice Chair
Saturday, November 4, 2006
8:00am - 3:15pm
Hyatt Regency Houston
Houston, TX
Adaani Frost, MD, Program Chair
Wayne Franklin, MD
Fernando Torres, MD
Ben deBoisblanc, MD, FACP, FCCP, FCCM
Roberta Diddel, PhD
Jack Stibbs, PHA Immediate Chair
CU-Boulder Bioengineering Research Targets Pulmonary Hypertension in Children
A new, multimillion-dollar grant awarded to the University of Colorado by the National Institutes of Health for the study of pulmonary hypertension in children will include the creation of 200 patient-specific computer models that will be used to help refine diagnosis and improve treatment of the life-threatening disease. Read article
Transplant Survivor Cherishing Gift 21 Years Later
Beneficiary of rare type of heart-lung transplant has weathered storm of pain and uncertainty. Read article
Heart to Heart: November is Pulmonary Hypertension (PH) Awareness Month
No one is immune. It can attack at any time. It is not specific to any age, ethnicity or gender - but African Americans may be at greater risk. And the worst part: pulmonary hypertension, known as PH, is difficult to diagnose. Read article
ANNOUNCEMENTS
Pathlight: Winter Issue Submission Deadline & Fall Issue Printing Error
The submission deadline for the Winter 2006 issue of Pathlight is this Friday, Nov. 3. We'd love to hear about what's going on in the PH community near you. Submissions should be sent to Christine at Christine@PHAssociation.org or mailed to our office at PHA, Attn: Pathlight, 801 Roeder Road, Ste 400, Silver Spring, MD 20910.
Due to problems beyond our control, the recent Fall 2006 issue of Pathlight may have gone out to you with a printing error where some pages are missing. If that is the case we would love to send you a complete version. Simply contact Christine at 301-565-3004 x114 or Christine@PHAssociation.org. We apologize for any inconvenience this might cause.
Summer Issue of Advances in PH, the PH Medical Journal, Available Online
The Advances Summer issue focuses on Pediatric Pulmonary Arterial Hypertension View the Summer 2006 Advances
Number of Sites Linking to PHAssociation.org is Over 45,000
This cool site allows you to look up the number of sites that link to a website and compare it to other sites in the industry. PHAssociation.org is linked from over 45,000 sites! Check it out Raise Awareness with a PH Pin - PH Heart, PH Ribbon, or PHA Logo
Help raise awareness about PH this Awareness Month with a PH pin. We have a PH heart pin, a PH ribbon pin, and a PHA logo pin. Help spread support for a cure. Buy a pin today
The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.
PH Awareness Month Campaign Highlight
The submission deadline for the Winter 2006 issue of Pathlight is this Friday, Nov. 3. We'd love to hear about what's going on in the PH community near you. Submissions should be sent to Christine at 
