PHA News Archive - January 19, 2007

Vol 8, Number 2		January 19, 2007
PHA News is an e-mail newsletter from the Pulmonary Hypertension Association covering PH related topics.

PHA News Editor - Sally Maddox skmaddox@bellsouth.net
Contributing Editors - PHA staff
reaching over 6000 subscribers
www.PHAssociation.org

PHA News is meant to give a picture of recent events and activities affecting the life
of the PH community. This compilation should not be viewed as endorsement of the
information provided or its accuracy.

		Topics For This Issue
	HEADLINES --TAKE ACTION Before Valentine's Day -- Ask Congress for a Budget with a Heart! --TAKE ACTION: Submit Comments on NHLBI New Strategic Plan in Support of PH Research --Pathlight Survey -- Tell Us How We're Doing --1st International Conference on Childhood Pulmonary Vascular Disease NEWS --Successful Study With Tracleer in Patients With Mildly Symptomatic Pulmonary Arterial Hypertension --Gilead Submits New Drug Application To U.S. FDA for Ambrisentan for the Treatment of Pulmonary Arterial Hypertension --FDA Sets New Review for Encysive's Drug ANNOUNCEMENTS --PH Caregiver & Family Member Shares Her Story --Give Champ the Bear this Valentine's Day --Haven't Gotten a PHA 2007 Calendar Yet? Purchase Yours Today --AZ Spur a Cure for PH Car Raffle, Win Car of Your Choice

TAKE ACTION Before Valentine's Day -- Ask Congress for a Budget with a Heart!

Take action today for PH research funding! Did you know that Congress is still working on finalizing the fiscal year 2007 federal budget? Did you know that legislators have not decided how to allocate billions of dollars? That means that YOU have a chance to make sure that health research, including PH research, gets the funding it needs in 2007. Use PHA's online tools to contact your Senators and Representative and ask them to create a "budget with a heart" -- one that allocates critical funds to healthcare research. Learn more and take action

TAKE ACTION: Submit Comments on NHLBI New Strategic Plan in Support of PH Research

The National Heart Lung and Blood Institute (NHLBI) has released a draft of their new strategic plan for comment by the public. This is an important opportunity to make sure the voice of the PH community is heard. Please review a draft of the plan and submit your comments. By submitting your comments you help to ensure that the institute knows the importance of not only maintaining but also improving their commitment to PH research initiatives. Review the plan and submit comments

Pathlight Survey -- Tell Us How We're Doing

For nearly a decade, Pathlight has been serving the PH community -- sharing success stories, breaking medical advances, and providing practical advice and hope for a cure. We want to be sure that the publication continues to meet the needs of our growing, diverse community. As a member of the PH community, Pathlight is your newsletter and we value your input. Please take a few minutes to let us know how well Pathlight meets your needs and how we can improve by completing our online survey. Please take the Pathlight survey (should take no more than 10 min.)

1st International Conference on Childhood Pulmonary Vascular Disease

Target Audience: Pediatric and Adult Pulmonary, Cardiology and Critical Care Physicians, Neonatology Physicians, and Advanced Practice Nurses University of California, San Francisco Department: Medicine Course Number: MPD07002 Credit: 13.25 AMA PRA category 1 Start: Friday, March 09, 2007 End: Saturday, March 10, 2007 Location: San Francisco, Calif., Omni Hotel Fees: $325: Physicians $200: Allied Health Professionals $200: Trainee $250: Members of Pediatric/Cardiac IC Society Learn more and register Deadline for Submission of Abstracts: February 1, 2007 Abstract Submission Guidelines (PDF)

NEWS

Leading Researcher in Skeletal Tissue Engineering and Regeneration to Speak at the MaxCyte Lunch Briefing at the Phacilitate Cell and Gene Therapy Forum 2007 Current clinical programs with MaxCyte-engineered cells include a Phase I/II clinical study for treatment of chronic lymphocytic leukemia (CLL) and a Phase IIa study for the treatment of primary Pulmonary Arterial Hypertension (PAH). Read article Progress Made in Pulmonary Hypertension Research Dr. William Harvey, a pulmonologist with Respiratory and Critical Care Consultants and director of the Pulmonary Hypertension Clinic, discusses pulmonary hypertension. Read article Trialstat Selected By Center For Risk Research As The Electronic Data Capture (EDC) And Data Management Provider for 18-Country European Phase IV Study Montreal, Quebec: TrialStat Corporation, a clinical data management on demand company, announced that it has been selected by Montreal-based Center for Risk Research (CRR) Inc. as the EDC and data management vendor for a Phase IV study on a new treatment for pulmonary arterial hypertension. Read article

ANNOUNCEMENTS

PH Caregiver & Family Member Shares Her Story Margaret Goodwin, PH caregiver of husband, children, and grandchildren shares her story. Read about Margaret's PH journey | Share your PH story Give Champ the Bear this Valentine's Day Would your loved ones enjoy getting a teddy bear for Valentine's Day? We've got the answer: Champ the Bear, the lovable spokesbear for PHA. You can even personalize Champ with the name of your loved one. Champ is available in brown and white. Purchase Champ Haven't Gotten a PHA 2007 Calendar Yet? Purchase Yours Today Keep track of important dates this year while learning more about PH and PHA. In addition to the great photos of PHers that illustrate our "community of hope," each month of the PHA 2007 calendar features information on services and programs available from PHA and tips for steps to take when someone is diagnosed. Makes a great gift for your family and friends. Place your order today! AZ Spur a Cure for PH Car Raffle Want to support PH research and have a chance to win a car of your choice?! A group of PH patients and their families in Phoenix, Ariz. are organizing the Arizona Spur-A-Cure Car Raffle: a raffle where the winner picks their choice of cars. Winner does not need to be present at the drawing, but they are responsible for picking up the vehicle or the cost of shipping. For more information and to purchase tickets please visit www.CurePH.com.

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