PHA News is meant to give a picture of recent events and activities affecting the life
of the PH community. This compilation should not be viewed as endorsement of the
information provided or its accuracy.
NEWS
--Medicare Won't Pay for Sex Drug
--Development and Launch of Newer and More Effective Therapies to Drive Growth
--Breathless? Could Be Pulmonary Hypertension, Doctors Say
ANNOUNCEMENTS
--Get Your Clinical Trial Listed on PHAssociation.org!
--Win Car of Your Choice While Supporting PH Research
Give Champ the Bear this Valentine's Day
Would your loved ones enjoy getting a teddy bear for Valentine's Day? We've got the answer: Champ the Bear, the lovable spokesbear for PHA. You can even personalize Champ with the name of your loved one. Champ is available in brown and white.
TAKE ACTION Before Valentine's Day -- Ask Congress for a Budget with a Heart!
Take action today for PH research funding! Did you know that Congress is still working on finalizing the fiscal year 2007 federal budget? Did you know that legislators have not decided how to allocate billions of dollars? That means that YOU have a chance to make sure that health research, including PH research, gets the funding it needs in 2007.
TAKE ACTION: Submit Comments on NHLBI New Strategic Plan in Support of PH Research
The National Heart Lung and Blood Institute (NHLBI) has released a draft of their new strategic plan for comment by the public. This is an important opportunity to make sure the voice of the PH community is heard.
Are you a parent of a child with PH and live in the U.S.? PHA is working with a group of parent volunteers to understand the kind of services and programs that are most important for YOU, your children and your family. Please help us better understand the needs and wants of the U.S. PH pediatric community by participating in a brief research project that will be conducted online. You would login to a secure site, once a day for three days, at a time convenient for you, and share your thoughts and opinions. If you are interested in participating please contact giving@PHAssociation.org.
Pathlight Survey -- Tell Us How We're Doing
For over a decade, Pathlight has been serving the PH community -- sharing success stories, breaking medical advances, and providing practical advice and hope for a cure. We want to be sure that the publication continues to meet the needs of our growing, diverse community. As a member of the PH community, Pathlight is your newsletter and we value your input. Please take a few minutes to let us know how well Pathlight meets your needs and how we can improve by completing our online survey.
Medicare Won't Pay for Sex Drug
American men will no longer receive Medicare coverage for Viagra and two other erectile dysfunction drugs when taken to improve sexual performance. The exception to the new reimbursement policy is if a man takes Viagra, Cialis or Levitra for conditions such as pulmonary hypertension, a lung problem. Read article
Development and Launch of Newer and More Effective Therapies to Drive Growth
The U.S. pulmonary arterial hypertension (PAH) markets present a mix of challenges and opportunities and are likely to provide pharmaceutical and biotechnology market participants prospects to develop improved therapies and diagnostic tools. The rapid growth of this market has captured the attention of industry participants across tiers of competition resulting in a strong pipeline of products. Read article
Breathless? Could Be Pulmonary Hypertension, Doctors Say
Pulmonary hypertension, a rare disease that's often misdiagnosed, can strike at any age and leave you breathless, and doctors said that women need to pay close attention to its symptoms. Kara Baughman, 24, has been battling pulmonary hypertension since she was 10. Read article
ANNOUNCEMENTS
Get Your Clinical Trial Listed on PHAssociation.org!
Medical Professionals: Does your institution participate in pulmonary hypertension clinical trials? PHA has a listing of available clinical trials on our website. We encourage you and your institution to list your trial on the PHA website. Please note that multi-center clinical trials will only be listed once and requests for a listing should be made by the sponsor or overall principal investigator. Listing your trial will raise awareness about trials in PH and may allow more patients access to clinical trials. To submit a clinical trial, please go to www.PHAssociation.org/Clinical_Trials/ and click on “Submit a Clinical Trial”. Have a question or comment? Please contact Medical Services at medical@PHAssociation.org or 301-565-3004 x104.
Win Car of Your Choice While Supporting PH Research This is YOUR chance to help raise money for PH research and have a chance to win a car of your choice?! A group of PH patients and their families in Phoenix, Ariz. are organizing the Arizona Spur-A-Cure Car Raffle: a raffle where the winner picks their choice of cars. Winner does not need to be present at the drawing, but they are responsible for picking up the vehicle or the cost of shipping. They can arrange delivery anywhere in the U.S.! For more information and to purchase tickets please visit www.CurePH.com. Best odds of winning are now!
The
information provided on the PHA website is provided for general information
only. It is not intended as legal, medical or other professional
advice, and should not be relied upon as a substitute for consultations
with qualified professionals who are familiar with your individual
needs.
HEADLINES
Win Car of Your Choice While Supporting PH Research
