PHA News
In This Issue
PH Resource Network Storms Capitol Hill
Introducing Our Newest Board Member, Rev. Stephen L. White, PH.D.
Pathlight Sports a New Look
New Daytime Chat!
PHA Sustainers Circle - Keep Hope Alive
PH Upcoming Event
Please support PHA in the CFC 
CFC Logo
CFC # 12097
 
Join Our E-News Lists
Join our other e-news lists
  • Advocacy Action Alerts
  • Advances in PH medical journal
  • Legacy E-Newsletter
  • Mid-Atlantic PHA Volunteers (MD, VA, DC)

Not already a PHANews subscriber? Subscribe today!

Join Our E-News Lists

Quick Links
Upcoming Events
 
 
4th Annual Ga PHA Fun Walk for a Cure
Saturday, October 27, 2007
11:00 a.m. - 3:00 p.m.
Drake Field, Peachtree City, Georgia 
 
 
The UCSD Medical Center Pulmonary Hypertension Program One-Mile Walk for PAH Saturday, November 3, 2007
 A route around UCSD Medical Center/Thornton Hospital, La Jolla, CA
 
 
Oldies concert for a Cure!
Sunday, November 4, 2007
Please join us for a fun afternoon of Doo Wop music, dancing and prizes with Chelsea: one of the great DooWop bands in the New York City area!
3:00 P.M. to 7:00 P.M.
 McCaffrey Hall, Holy Cross Church
329 West 42nd Street New York, New York

 
7th Annual Stanford Race Against PH
Sunday, November 4, 2007
 
 
Southwest Florida PH Symposium
Friday, November 9, 2007
Hyatt in Sarasota, Fla.
Doctors Hospital of Sarasota, Florida
Featuring Dr. Michael Poon from Cabrini Medical Center in New York City and five other top PH doctors. This event is open to doctors and medical staff. Patients and caregivers are welcome as well.
 
 
Southwest Florida Escape to Vegas Dinner Fundraiser
Friday, November 9, 2007
Hyatt of Sarasota
6 pm
 
 
PHA Congressional Luncheon Coming on November 15th!
Please save the date. We will keep you posted as more information becomes available.
 

 Pulmonary Hypertension Summit 2007 
November 16-17, 2007
Cleveland, Ohio
 

    2nd Annual Phenomenal Hope for a Cure 
November 17, 2007
Omaha, Nebraska
6:00 pm - 12 midnight
Dinner, silent & live auction, raffles, and more!
 
 
Bowl PHor Cure
November 17, 2007 
12noon - 4:00pm
 
Vol 8 /Number 21 October 23, 2007
PHA logo
PHANews Editor - Sally Maddox
skmaddox@bellsouth.net
Contributing Editors - PHA staff
 
reaching over 6500 subscribers
www.PHAssociation.org
 

We are pleased to announce that Diane Greenhalgh, our Webmaster, is now back on a part-time basis. Thank you for your patience and support during her absence.

PH RESOURCE NETWORK STORMS CAPITOL HILL

Lobby DayOn October 11, sixty members of the PH Resource Network visited fifty-three Congressional offices to urge co-sponsorship of H.R. 3368, the Pulmonary Hypertension Research and Education Act of 2007.  Health professionals from around the country participated in a brief lobbying training and then traveled to Capitol Hill where they were addressed by PH champions Rep. Kevin Brady and Rep. Tom Lantos before breaking off into lobby groups to conduct their visits. 

More then 75% of event participants were first-time lobbyists who, as one said, saw lobby day as "too important an opportunity to pass up."  Whether they'd been to Capitol Hill before or not, everyone was there to make a difference and their work is already paying off.  Lobby Day SpeakersOn Monday October 15, the PH Research and Education Act received three new co-sponsors!  All three had received visits from PH Resource Network members the week before.

Lobby days are just one way to communicate with your members of Congress about PH legislation.  For information about how you can make a difference as a PH advocate, contact Katie at 301-565-3004 x109 or Katherine@PHAssociation.org.

INTRODUCING OUR NEWEST BOARD MEMBER
Welcome Rev. Stephen L. White, Ph.D.
 
Steve White
The PHA Board of Trustees is delighted to welcome Steve White, a priest of the Episcopal Church, as its newest member. He has served as Episcopal chaplain at Princeton University since 2000. Steve lost his daughter Christen to PH in 2002 and has been involved in helping PHA support groups deal with grieving.
 
Prior to entering the ordained ministry in 1997 Steve worked in various capacities in the health care field including hospital administration, managed psychiatric care, teaching and health services research at the University of South Florida College of Public Health, and in developing health promotion services and hospital consulting services for Johnson & Johnson Health Care Systems. Steve and his wife Andrea, a speech-language pathologist, and their son Aidan divide their time between Princeton, New Jersey and Hancock, Massachusetts.
 
To read about other PHA board members go to: www.PHAssociation.org/AboutPHA/Board-Members/
 
TELL US WHAT YOU THINK OF THE "NEW" PATHLIGHT
Beginning with this summer's issue, Pathlight, our member newsletter, sports a new look. If you've had a chance to read through the summer or fall issues, let us know what works and what doesn't. We want to know how Pathlight can continue to evolve so that it serves you best. Let us know what we got right - Is it easier to navigate? More interesting to read? Does it look nicer? Are we reporting on what you need to know? Whatever your reaction, we'd love to hear it! Share your thoughts or ideas with Christine.
 

E-mail Christine@PHAssociation.org,

call 301-565-3004 x114 or write to:

Christine Dickler
Pulmonary Hypertension Association
801 Roeder Rd., Suite 400
Silver Spring, MD 20910

 
NEW DAYTIME CHAT!
Mondays at 2pm EST (11am PST) with Lora Mausling
 
The new first Monday daytime chat went very well, with 
a total of 11 people participating. According to chat host Lora Mausling, "It went very well for the most part. We had someone who was new to PHA. I am encouraged by the number of people who were in there today."
We hope that you will join us for our next chat! 
 
To learn about PHA chats or for a schedule of chat times go to: www.phassociation.org/Chat/
PHA SUSTAINERS CIRCLE
Keep Hope Alive - Join PHA's Monthly Giving Program
 
PHer joins PHA's Sustainers Circle to stay connected to PH community while far away from home.
 
Leslie HessLeslie Hess, Aunt of pediatric patient Iain Hess, is very passionate about our cause. A resident of Washington, D.C, she volunteered regularly in PHA's office until she started working overseas.
 
Making monthly credit card gifts to PHA via the Sustainers Circle is a convenient way for her to support our cause while she is away in Kosovo. She says, "because I work abroad, I am not able to volunteer my time to supporting the fight against PH. I decided to join PHA's Sustainers Circle in order to stay connected to the PH community and support my family while being far from home."
 
PHA maintains a host of programs that benefit patients, their family members and the medical professionals who treat them. We fight day in and day out in our search for a cure because pulmonary hypertension never takes a break -- and we don't either. We invite you to support our shared cause by becoming a member of PHA's Sustainers Circle, PHA's monthly giving program. By giving PHA permission to collect a monthly payment from your credit card in the amount you set, you help us keep hope alive.

 
 
PH UPCOMING EVENT
As reported by the American Thoracic Society, ATS 2008 Toronto will offer more than 400 sessions and 800 speakers on important scientific and clinical advances in pulmonary, critical care, and sleep medicine. To find out more about the event, which takes place May 16 - 21, click on the link below.