PHA News
In This Issue
4th Annual Congressional Luncheon
Conference Scholarship Applications Available
Awareness Month Events
PH Resource Network Symposium Highlights
Media Corner: Share Your Story
Join PHA for Awareness Month
PH in the News
Website Survey Prize Winners
Upcoming Educational Events for Medical Professionals
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Upcoming Events
 
 
Southwest Florida PH Symposium
November 9, 2007
Sarasota, Fla.
 
Southwest Florida Escape to Vegas Dinner Fundraiser
November 9, 2007
Sarasota, Fla.
 
Cookie Lee Jewelry Party Fundraiser
November 10, 2007
Phoenix, Ariz.
PHA 4th Annual Congressional Luncheon November 15, 2007 
Washington, D.C. 
HOPE FLOATS!
November 16, 2007
Hamilton, Ala.

Pulmonary Hypertension Summit 2007 
November 16-17, 2007
Cleveland, Ohio
 
2nd Annual Phenomenal Hope for a Cure 
November 17, 2007
Omaha, Neb.
 
Bowl PHor Cure
November 17, 2007 
Wappingers Falls, N.Y.
Baltimore Fun Walk for a Cure
November 24, 2007
Baltimore, Md.
Hub for the Holidays
November 30, 2007
Spartanburg, S.C. 29306
5th Annual Update in Pulmonary Hypertension 
November 30, 2007
Boston, Mass.
Pulmonary Hypertension: 2007 Update
December 1, 2007
Jacksonville, Fla.
Vol 8 /Number 22 November 5, 2007
PHA logoPHANews Editor - Sally Maddox
skmaddox@bellsouth.net
Contributing Editors - PHA staff
 
reaching over 6500 subscribers
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227 Days to 2008 PHA Conference!
Apply now online conference scholarships!
Keep checking for updates at
http://www.PHAssociation.org/Conference/.

JOIN PHA FOR ITS 4TH ANNUAL CONGRESSIONAL LUNCHEON
PH Resource Network at Lobby Day in OctoberOn Thursday, November 15, 2007, PHA will host its 4th Annual Congressional Luncheon in Washington, D.C. No matter where you live, you can help make this year's Congressional Luncheon a success. Personal contact from a constituent is the most effective way to make sure that Members of Congress are in the room to learn about PH and about what they can do to help. Invite your senators and representative today. Then, invite your family and friends! Enjoy lunch while learning about PH and the PH Research and Education Act of 2007 from a series of speakers directly impacted by pulmonary hypertension.
 
We need your help to make this event a success!
Invite your Members of Congress or R.S.V.P. for the luncheon
2008 CONFERENCE SCHOLARSHIP APPLICATIONS NOW AVAILABLE!
Online Application New for PHA's Eighth International Conference
 
2006 Conference attendees having funThe PHA International Conference gives the PH community a chance to gather together for a common cause, share stories and learn about PH. In order to make sure no one misses out on the conference due to financial reasons, PHA facilitates several scholarship opportunities. For PHA's 8th International Conference we have something new! To expedite the process, scholarship applications can be submitted online. Not tech savvy? Don't worry. Paper applications will still be accepted. Learn more and apply today!
 
If you have questions about conference scholarships please contact Jennie at scholarship@PHAssociation.org or 301-565-3004 x123.
awareness logoNOVEMBER IS PH AWARENESS MONTH!
ATTEND ONE OF THE MANY EXCITING EVENTS GOING ON THIS MONTH!
PHer driving for a cure in her wheelchair at the Minnesota PHun WalkThis is the season for the PHA community -- including all the family and friends of PH patients -- to get together for mutual support, and to make a difference. Special event planners are organizing events to raise awareness and funds for research and PHA, and you can help too!
 
So get out to a PHA event near you! There is an average of 3 special events each week during awareness month, so check the calendar to see what's going on near you. Here are three ways you can get involved:
  1. Attend one of the many Awareness Month Events! Our event planners have been working hard to create events you won't want to miss.
  2. Offer to help event planners near you! Call or email event planners and tell them you want to volunteer. Pass out fliers before an event, help with registration, make goodie bags or other tasks. You can find the planner of each event listed on the calendar, along with their contact info. This is also a great way to make new friends!
  3. No events nearby? Have your own! While golf tournaments and funwalks take several months of planning, you can plan a House Party in just a few weeks. Contact Deirdre to order your free copy of "Cookin' Up a Cure: PHA's House Party Guide" at Deirdre@PHAssociation.org or 301-565-3004 x125.
Medical ProfessionalsBRINGING ADVANCES INTO PRACTICE AT 2007 PH RESOURCE NETWORK SYMPOSIUM
2007 PH Research Network SymposiumIt was wonderful to see so many new faces at the 2007 PH Resource Network Symposium this year! The Symposium Committee worked hard to bring a variety of up-to-date topics and dynamic speakers to its two-day educational event at the Crystal City Hyatt Regency in Arlington, Va., in October. This biennial event continues to grow and was attended by 350 allied healthcare professionals including nurses, nurse practitioners and respiratory therapists. Many came away from the event with a sense of purpose and meaning in their professional daily lives.
 
Read all about the symposium and the successful lobby day that brought in 3 new co-sponsors for the PH Research & Education Act as well as view presentation slides and photo albums from the event.
 

Thanks to an unrestricted educational grant from Gilead, a complimentary CD-ROM with the slides and audio of all the presentations will be sent to all event participants and will be available online late November/early December.

Awareness Month LogoAWARENESS MONTH OPPORTUNITY
MEDIA CORNER: Your Story is a Powerful Tool
You can help raise awareness in your community this month by reaching out to your local media and offering an interview through PHAware! Reporters NEED stories that will be meaningful to their community. Your community NEEDS to gain an understanding of PH. What is your most powerful tool in connecting these needs? Your own PH story. 
 
You can contact local media outlets and educate reporters about PH and the ways in which it impacts your life. PHA will provide you with the informational materials, ideas and advice you need to build relationships with your local media. Help put a face on PH and raise awareness in your community. 
 
Recently online support group chat moderator Lora Mausling did exactly this! View Lora Mausling's TV interview clip
It is so very easy to do. Send emails, make phone calls. We all were once at the beginning of PH and very scared and didn't know anything about PH. There are lots of people who may be out there that are scared and feel they are alone. We can help. We can give them hope. Reach out and make a difference. - Lora Mausling
awareness logoAWARENESS MONTH OPPORTUNITY
JOIN PHA AND MAKE A DIFFERENCE!
Be a Part of History 
 
Did you know that just ten years ago, PHA had its first Awareness Week, November 2-8? Since then, PHA has given a voice to thousands of patients and families fighting PH and has funded millions in research with the goal of ending pulmonary hypertension. Be a part of the organization that is changing the face of this illness by marshalling the power of patients, family members and medical professionals from around the world! Join PHA!
 
Join Online or call Sarah at 301-565-3004 x127 for more information.
newspaper imagePH IN THE NEWS 
Tracleer Shows Clinical Benefit as Combination Therapy with Sildenafil for Pulmonary Arterial Hypertension
(PRNewswire) Chicago, Ill. -- Actelion Pharmaceuticals US, Inc. today announced positive results from two trials demonstrating that Tracleer(R) (bosentan) may be safe and effective as a combination therapy for the treatment of pulmonary arterial hypertension (PAH). Data from both studies suggest that Tracleer, when given in combination with sildenafil, is well-tolerated and improves hemodynamics in PAH patients. Read Article

Breakthrough For Fatal Lung Disease
(WPTV-5, NBC) West Palm Beach, Fla. -- An innovative approach to treating pulmonary hypertension is making waves in the medical world. Doctors are combining gene and cell therapy to treat the condition. Read Article
ANNOUNCEMENTS
COMMUNITY MEMBERS WIN WEBSITE REDESIGN SURVEY PRIZE PACKAGE
Barbara Smithson on left at PH Resource Network Symposium in OctoberWe reported a few weeks ago about the great response we received from you all about our website -- what you like and what you want changed. We were so thrilled with the number of people who took the time to fill out the survey -- 547 of you to be exact -- that we chose 2 prize winners. With our trusty webmaster Diane on the injured list we weren't able to announce the winners of the survey prize package. So without further adieu, the lucky winners are:
  • Sylvia Steinbrock, PHA member from New York City
  • Barbara Smithson (pictured above left), PH Resource Network member and Research Nurse Coordinator at Rhode Island Hospital PH Center
What they won: Pulmonary Hypertension: A Patient's Survival Guide, PHAdvocacy DVD - Building Hope, Gaining Momentum (features inspiring speeches from our 2006 International Conference), CARD-iology note cards designed by PHers, PHA t-shirt, PHenomenal Hope periwinkle wristband and PH heart pin.
 
We will be using your responses to the survey in our website redesign process over the next year to completely revamp our website with a new look, navigational structure and new features. So keep the feedback coming! Contact Diane Greenhalgh at web@PHAssociation.org or 301-565-3004 x119. She loves to hear from you!
Medical ProfessionalsUPCOMING EDUCATIONAL EVENTS FOR MEDICAL PROFESSIONALS
If you live in the Sarasota, Cleveland, Boston or Jacksonville areas, don't miss these CME education events that will be taking place this November and December. These events are part of Building Medical Education in PH, a partnership program between PHA and PH Centers designed to increase attendance and raise awareness at events geared toward medical professionals.
 
Upcoming events include:
 
November 9, 2007 - Sarasota, Fla.
Gulfcoast Pulmonary Hypertension Seminar
Contact Gail Bucci at 941-531-4532 or
gailbucci@aol.com
 
November 16 & 17, 2007 - Cleveland, Ohio
Pulmonary Hypertension Summit 2007
 
November 30, 2007 - Boston, Mass.
5th Annual Update in Pulmonary Hypertension
 
December 1, 2007 - Jacksonville, Fla.
Pulmonary Hypertension: 2007 Update
More info: Event Flier (PDF)
 
If you would like to partner with PHA in promoting your next CME event, please contact Jessica Hardy, Meetings Planner, at 301-565-3004 x128 or meetings@PHAssociation.org.