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| Upcoming Events |
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San Diego Fish Fry Fundraiser
Feb. 8, 2008
San Diego, Calif.
Update in PH Medicines
Feb. 19, 2008
North Richland Hills, Texas
A Cure for "Five Pennies"... Daddy's Little Girl
Feb. 23, 2008
Schaumburg, Ill.
10th Annual (& Final) Golf Tournament
Apr. 25, 2008
Spring, Texas
1st Ever Cure PH Bug Boil
Apr. 26, 2008
The Woodlands, Texas
Fun Walk for a Cure
Apr. 26, 2008
Brentwood, Tenn.
San Francisco Bay Area PH Golf Tournament
May 13, 2008
San Francisco, Calif.
The East Cobb Concert for a Cure
May 31, 2008
Marietta, Ga.
1st Annual Wojo Golf Classic
July 21, 2008
Dana Point, Calif.
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| Vol 9/Number 3 |
February 5, 2008 |
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| PREPARE TO GO ON A JOURNEY OF HOPE AND DISCOVERY |
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PHA's 8th International PH Conference and Scientific Sessions will be here before you know it -- June 20-22 in Houston, Texas, featuring "don't miss" educational, networking and support opportunities for PH patients, family members and medical professionals alike.
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| WHAT'S EVEN MORE MONUMENTAL THAN THE STATE OF THE UNION SPEECH? |
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 The State of PHA by PHA President Rino Aldrighetti
Come take a look at what's going on in the fight for the cure. See what programs are in the works for 2008.
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FUN VIDEOS TO INSPIRE YOU AND BRIGHTEN YOUR DAY! |
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While you're there, you can also see highlights of the media coverage received by PH community members in the Faces of PH campaign video.
Feeling inspired? PHA's website offers materials to get you started turning your personal PH journey into a powerful awareness-raising tool.
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| SUPPORT GROUP LEADER RE-LAUNCHES WITH FIRST MEETING |
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 In a town of 4,000, Alex Flipse found another patient and started her Support Group in 1999. After her fellow local patient passed away, she took a break from running her group.
Last winter, she discovered that there was yet another patient in her small town. A woman wearing a Flolan fanny-pack walked into the department store where she works at daily, and this motivated her to start her group up again.
With help from PHA, she connected with her local specialty pharmacy and pharmaceutical companies. She's running the group in the next town over, Victoria, Texas, as this region is much larger (population 200,000) and there are more patients in the community.
Their first meeting is March 8, and Alex is busy making plans. If you're in the Victoria, Texas, area, check it out.
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 PH IN THE NEWS |
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An Increasingly Recognized Complication of Hereditary Hemolytic Anemias and HIV Infection
(The Journal of the American Medical Association) -- It is estimated that 10% of patients with hemoglobinopathies and 0.5% of patients with HIV infection develop moderate to severe pulmonary hypertension. Read Article
JAMA Patient Page: Pulmonary Hypertension(The Journal of the American Medical Association) -- The pulmonary artery is the main vessel that carries blood from the heart to the lungs. For a person at rest, blood pressure in a normal pulmonary artery is about 15 millimeters of mercury (mm Hg). In an individual with pulmonary hypertension, the average pressure in the pulmonary artery can be more than 25 mm Hg. Read Article
Details About PAH Might Save Lives
(Erie Times News) -- Recently you had a column regarding a gentleman who described breathlessness, exercise intolerance and faintness. I had these exact symptoms before I was diagnosed with pulmonary arterial hypertension.
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| PHA RECEIVES HIGHEST CHARITY NAVIGATOR RATING FOR FIFTH CONSECUTIVE YEAR |
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 As we were preparing to go "to press" with this edition of PHANews, we just learned that PHA has earned our fifth consecutive 4-star rating from Charity Navigator. Charity Navigator, an independent charity evaluator, assesses the financial health of 5,300 of America's best-known charities. According to the notification, only 3% of the charities it has rated received at least five consecutive 4-star evaluations, "indicating that the Pulmonary Hypertension Association outperforms most charities in America in its efforts to operate in the most fiscally responsible way possible." We are very pleased to receive this designation.
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 We don't think Groucho Marx had it right when he said: "I won't belong to any organization that would have me as a member."
If you aren't a member of PHA, we would love to have you! Not only do you personally benefit from your membership, you join thousands of others in supporting patient, family and medical professional services, expanded research and education, building awareness of PH, and changing the history of this illness.
JOIN TODAY | |
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