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| Upcoming Events |
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Speaker: Jeannette Morrill from the P.E.E.R. Network
Mar. 3, 2008
Dallas, Texas
Lung Transplantation talk by Dr. Torres from UTSW
Mar. 18, 2008
Ft. Worth, Texas
Spur a Cure for PH
Apr. 12, 2008
Phoenix, Ariz.
10th Annual (& Final) Golf TournamentApr. 25, 2008 Spring, Texas
1st Ever Cure PH Bug Boil
Apr. 26, 2008
The Woodlands, Texas
Fun Walk for a Cure
May 3, 2008
Brentwood, Tenn.
Minnesota Pulmonary Hypertension Education Day
May 3, 2008
University of Minnesota
San Francisco Bay Area PH Golf Tournament
May 13, 2008
San Francisco, Calif.
The East Cobb Concert for a Cure
May 31, 2008
Marietta, Ga.
1st Annual Wojo Golf Classic
July 21, 2008
Dana Point, Calif.
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| Vol 9/Number 5 |
March 3, 2008 |
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PERSONAL STORIES, HOPE AND HUMOR SHARED IN OUR JOURNEYS |
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 Members of the PH community continue to share their stories through the Our Journeys campaign. We added five new stories this week, which you can read on the Our Journeys web page.
As you explore these stories, be sure to check out Our Journeys' newest feature, S.O.B. (for shortness of breath), a cartoon series by PH patient Leslie Polss that addresses Pulmonary Hypertension with hope, humor and a lightness of heart.
Do you have a Journey to share with the PH community? Visit the Our Journeys page and click on "Share Your Story!" |
| YOU SPOKE, WE'RE LISTENING. PHA CONSTITUENT SURVEYS YIELD INVALUABLE FEEDBACK |
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 Let us know if you asked for more information
The constituent surveys PHA recently conducted yielded a great deal of invaluable information that the PHA Board and staff will be reviewing, analyzing and responding to the over the coming months. We learned what you value most, what you want more of, and where improvements are in order. Some of you also asked for more information, but due to the anonymous nature of the survey, we can only respond to you if you get back to us.
We are deeply grateful to everyone who took the time to respond to the surveys. Your answers will help chart PHA's course over the coming months and years. |
| FIRST MEETING FOR HERSHEY/HARRISBURG PH SUPPORT GROUP A HUGE SUCCESS |
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 Twenty-four patients and their caregivers attended from Lancaster, Elizabethtown, Harrisburg and Allentown, Pennsylvania for the Hershey/Harrisburg PH Support Group's first meeting.
Much of the meeting was about people connecting with one another and feeling good about the frlends they made and what they had learned at the meeting.
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| WINTER COLD WEATHER TIPS FOR PH PATIENTS |
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 Before going out in the cold check out these extremely helpful tips on cold & flu season; bathing and primping; staying in; braving the cold; and staying safe on the road.
Read tips |
| FEBRUARY EVENTS SHOW HOW AMAZING OUR PH COMMUNITY IS |
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 A Cure For Five Pennies Helps Raise Awareness and Funds For PH
In March 2006, 4-year-old Nicole Elsenbroek's parents, Scott and Maria, discovered their daughter had pulmonary hypertension. A group of moms who met each other and became close friends when their children were in preschool decided to organize a fundraiser in her honor this winter.
Fish Fry In San Diego Brings Community Together
Lori Bonsteel organized a fish fry in her community this February in the memory of her sister, Doreen, who lost her fight to PPH 6 years ago. Lori had a great post-event report about the event:
"The fish was perfectly cooked and delicious! We had about 35 volunteers helping with selling tickets, setting up the hall, buying, cooking, serving and cleaning. Everyone did a fantastic job and the cooks looked great in their "Cookin' Up a Cure" aprons."
Read Lori's Article |
| CONFERENCE SCHOLARSHIP FUND GETS BOOST FROM SPECIAL EVENTS |
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 Two special events that took place recently found a unique way to give back to the PH community. Nathan's Run, Walk n' Roll (Lexington, Ky.) and the UC-San Diego One Mile Walk for PH (San Diego, Calif.) each contributed a portion of their event proceeds to the Conference Scholarship Fund.
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 PH IN THE NEWS |
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Kindergartner with Lung Disease Benefits from Therapy at UCLA(Newswise) -- Initially, the young Burbank, Calif., resident was thought to have exercise-induced asthma. But as he got sicker, an X-ray revealed an enlarged heart, and doctors made the grim diagnosis of pulmonary hypertension - high blood pressure in the arteries that supply the lungs. His parents were quickly referred to a pediatric cardiologist at Mattel Children's Hospital UCLA. Read Article
(TheDaily.com) -- Most transplant recipients will never know who their donors were, but Laurie Kronk does.
Pfizer to Buy Encysive and Thelin Lung Drug(Reuters) New York -- Pfizer Inc said it has agreed to pay about $195 million to acquire Encysive Pharmaceuticals Inc and its Thelin lung-disorder medicine that has repeatedly failed to win U.S. approval. Read Article |
| WEB OF FRIENDS: THE ANSWER TO YOUR FRIEND'S QUESTION, "HOW CAN I HELP?" |
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 How often have your friends or family members asked, "How can I help?" when they learn that someone they care about is living with pulmonary hypertension? Pretty often, we would guess. Web of Friends, which "electrifies" our popular Circle of Friends letter-writing and fundraising program, provides a unique answer to that question.
Web of Friends gives you an easy way to share your PH story while raising awareness and funds toward a cure for PH and for the PHA services that mean so much to you. PHA has teamed up with FirstGiving, an online fundraising service that allows you to take your story across the country - or the world - in just minutes.
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