PHA News
In This Issue
Brave PH Patient Shares Remarkable Journey On TV
Early-Bird Conference Registration Has Been Extended
Breakthrough for Stem Cell Research Could Help PH Patients
PH Groups Are Popping Up Around The World
Victoria Texas Has An Amazing First Meeting
PH IN THE NEWS
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Upcoming Events
 
Lung Transplantation talk by Dr. Torres from UTSW
Mar. 18, 2008
Ft. Worth, Texas
 
Spur a Cure for PH
Apr. 12, 2008
Phoenix, Ariz.
 
10th Annual (& Final) Golf Tournament
Apr. 25, 2008
Spring, Texas
 
1st Ever Cure PH Bug Boil
Apr. 26, 2008
The Woodlands, Texas
 
Fun Walk for a Cure
May 3, 2008
Brentwood, Tenn.
 
Minnesota Pulmonary Hypertension Education Day
May 3, 2008
University of Minnesota
 
San Francisco Bay Area PH Golf Tournament
May 13, 2008
San Francisco, Calif.

The East Cobb Concert for a Cure
May 31, 2008
Marietta, Ga.

1st Annual Wojo Golf Classic
July 21, 2008
Dana Point, Calif.
Vol 9/Number 6 March 17, 2008
PHA logoPHANews Editor - Sally Maddox
skmaddox@bellsouth.net
Contributing Editors - PHA staff
 
reaching over 6500 subscribers
www.PHAssociation.org
BRAVE PH PATIENT SHARES HER REMARKABLE JOURNEY ON TV
PH Patient Kirsten Larson appeared on the Discovery Health Channel's Mystery Diagnosis to share her PH story. Kirsten's episode, titled "The Girl Nobody Believed," recreated Kirsten's journey through a puzzling and difficult diagnosis.The show was aired on March 10 and repeated on March 15. You can go to the Discovery Health channel to check for possible upcoming re-airings.
EARLY-BIRD CONFERENCE REGISTRATION HAS BEEN EXTENDED!
Register by April 1 to receive a $25 discount
Due to the overwhelming response we've received so far from members of our community, PHA has decided to extend early-bird registration until April 1. Register Now, as this is the last chance to take advantage of this great discount!
 
The registration fee includes Conference Sessions, five meals, breaks, conference bag and t-shirt. Hotel reservations must be made directly with the Hilton Americas and are not included in the registration fee.
 
PHA's Conference is a don't-miss opportunity for the PH community to come together and discuss the most recent advances in PH research and treatment. Learn about all the great activities, medical sessions, support group and networking meetings, and much more!
BREAKTHROUGH FOR STEM CELL RESEARCH COULD HELP PH PATIENTS
In a recent interview, Dr. Michael Kutryk, M.D., a cardiologist at St. Michaels Hospital in Toronto, Canada, explains how a patient's own cells may be used to repair damage caused by PH. He describes the endothelial lining that covers the pulmonary vasculature, which are replaced by circulating endothelial progenitor cells. These freely circulating endothelial progenitor cells may be stimulated to become healthy cells and used to repair damaged blood vessels. This is of interest to the PH community due to the damage and eventual loss of blood vessels that results from PH.
PH GROUPS ARE POPPING UP AROUND THE WORLD
A Warm Welcome to PHA Norway!
 
We are pleased to report that a new association is currently being created in Norway. PHA is now in contact with 45 PH associations and groups around the world!
 
Singapore PH Support Group 2008 Dinner & Meeting A Huge Success
 
January 2008 marked a milestone for PH Patients in Singapore as they got together to enrich themselves with an educational and informative support group session featuring lectures from 2 PH specialists: Dr. James Yip, Senior Consultant Cardiologist of the National University Hospital (NUH) and Dr. Tan Ju Le, Consultant Cardiologist from the National Heart Centre (NHC).
 
Italian Booklet on Pulmonary Hypertension Now Available

This free booklet includes a brief overview of the history of PH and medical information about the disease, including the different forms of PH, diagnosis, treatment, surgery options and future developments in scientific research. There is even a chapter devoted to the process of new drug approval and how patients can participate in research through clinical trials.
More Information and Details on how to receive a booklet
VICTORIA, TEXAS, HAS AN AMAZING FIRST MEETNG

The first meeting of the Victoria, Texas, support group was a huge success. Patients and caregivers came from all over for the meeting on March 8. A "meet and greet" let people openly talk with others in the same situation about their feelings, hopes and dreams. 

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newspaper imagePH IN THE NEWS 

Cure PH Committee Plans Final Golf Tournament  

(The Woodlands) Texas -- The Cure PH Committee is preparing for their 10th and final Cure PH golf tournament as they make plans to introduce the first Cure PH Bug Boil.
 
Boy Kept Alive on Viagra
(News.com.au) -- The toddler has a rare condition that causes chronic high blood pressure. Something as simple a chest infection could kill him. The pulmonary hypertension can be controlled with four doses of Viagra a day.
Read Article
 
Pulmonary Hypertension Overview - How to Manage it
(Los Angeles Chronicle) -- Millions of people are affected by high blood pressure (hypertension), a condition in which blood travels through the body's arteries at a pressure too high for good health. High blood pressure in the arteries that supply the lungs is called pulmonary hypertension (PHT).