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PHA's 8th International PH Conference & Scientific Sessions
June 20-22, 2008
Houston, Texas |
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| Upcoming Events |
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Putt for PH
May 24, 2008
Firefly Forest, Hampton N.B., Canada
Pediatrics & Children's Activities at Conference Q&A Chat
May 28, 2008 online
The East Cobb Concert for a Cure
May 31, 2008
Marietta, Ga.
Spicy Pickle Panini Pizzetti Salads Subs Grand Opening!
May 31, 2008
Cedar Park, Texas
Yale University's 2nd Annual PH Symposium
June 6, 2008 Westport, Conn.
PHA's 8th International PH Conference & Scientific Sessions
June 20-22, 2008
Houston, Texas
PHA Poker Run
June 21, 2008
Indiana County, Penn.
1st Annual Wojo Golf Classic
July 21, 2008
Southern California
6th Annual JFK Tower Golf Tournament
July 21, 2008
White Plains, N.Y. | |
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| Vol 9/Number 11 |
May 28, 2008 |
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Conference is less than a month away!
Pre-registration ends June 10
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PULMONARY HYPERTENSION HIGHLY VISIBLE AT ATS ANNUAL MEETING |
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Members of the PH medical community and PHA staff were on hand to raise awareness of pulmonary hypertension at the American Thoracic Society's Annual Meeting May 16-21 in Toronto, Canada. Medical professionals gathered at the Metro Convention Center for five days of lectures, paper presentations, poster sessions, and networking.
 More than 45 sessions about PH, including several poster sessions, were featured. Members of PHA's Scientific Leadership Council presented in three different dinner lectures about PH, covering topics such as the REVEAL registry, the future of treatments, and the growing knowledge about familial PH.
As a member of the Public Advisory Roundtable (PAR), a group of organizations representing people affected by respiratory or critical illnesses and sleep-related conditions, PHA had the opportunity to participate in patient lecture sessions, a poster session, and the PAR Symposium. This year the PAR component of the conference focused on respiratory therapy, an exciting new area for PH patients and medical professionals alike.
PHA also raised awareness and gave out a lot of information at our exhibit booth. The exhibit area was amazing to see with larger PH exhibits dominating the floor. Gilead used their exhibit to raise funds for PHA with doctors taking a quiz about PH. Over $75,000 was raised to support PHA's work.
Additionally, important developments in the area of pulmonary hypertension were unveiled at the ATS conference. Here's some of the news that came out of this year's presentations:
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| DISCOUNTED ROOM RATES AT HOUSTON HOTELS EXPIRE ON MAY 29 |
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Don't Delay, Book Today!
 Due to unprecedented registration for our 2008 International Conference, PHA's room block at the Hilton is sold out on Saturday, June 21. PHA has set up room blocks at the nearby Courtyard by Marriott ($109/night) and the Doubletree Hotel ($139/night), and will have a shuttle running between the Hilton and both overflow properties. To view more information regarding hotels for the PHA Conference, visit the Conference Hotel page.
Patients who are unable to book a room at the Hilton should contact Jessica Hardy, PHA Meetings Planner, at 240-485-0768 or Jessica@PHAssociation.org to be placed on a waiting list. PHA will make every effort to move patients into the Hilton as cancelations occur.
If you are staying at the Hilton and need to cancel your room reservation for any reason, please contact Jessica Hardy instead of calling the Hilton directly. PHA will cancel your reservation with the hotel, send you a confirmation, and use the available room for a patient on the waiting list. |
| PRESIDENT BUSH SIGNS GENETIC INFORMATION NONDISCRIMINATION ACT |
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 It's official! After passing Congress on May 1, the Genetic Information Non-Discrimination Act (GINA) was signed into law by the President on May 21. GINA sets strict standards for the use and disclosure of genetic information and imposes penalties against companies that violate these provisions.
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| HOW TO USE CONFERENCE TO GET INVOLVED |
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The 2008 PHA International Conference can be a great jumping off point to get more involved in PHA. The information and material you gather and the friends you make at Conference can help you participate in advocacy, awareness-raising, fundraising and connecting to other patients after you get home from Houston. If you are interested in getting more involved make sure to attend one or all of the following activities:
This is just a small taste of the sessions offered at Conference. Please view the Conference agenda to map out your personal Journey of Hope and Discovery! And don't forget to visit the PHA Booth in the exhibit hall to speak to PHA staff and pick up materials on all of PHA's programs. |
| HOW I DISCOVERED A GREAT OPPORTUNITY ON PHA'S WEBSITE WITH THE GIFT CALCULATOR |
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by Rev. Stephen L. White
Did you know that you could make money while helping PHA?
Like a lot of people, I sometimes while away time surfing the Internet. And lately I've spent quite a bit of time poking around PHA's information-packed website. It is truly amazing to see the breadth of information that is helpful to so many in their fight against PH. The other day, however, I made a surprising discovery while surfing the PHA site.
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| TAKING YOUR KIDS TO CONFERENCE? |
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Pediatrics and Children's Activities Online Q&A Chat
Wednesday, May 28 at 2 p.m. ET
 Join us this Wednesday for an online chat and get all your questions answered about activities for children and teens at Conference, including the Round Up Room and field trips. Also learn about the medical sessions and support groups specifically for families of children with PH. |
 PH IN THE NEWS |
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Terminal Illness Can't Dim Her Optimism
(Whittier Daily News) Whittier, Calif. -- To look at her and listen to her, Monica Marie Sanchez, 28, has knockout good-looks and a smart, energetic persona to boot. So, you wouldn't guess that she is classified as terminally ill and has been on a waiting list for a double lung transplant for seven years. In fact, she's at the top of the list and keeps letting others go ahead of her because she "feels pretty good." While she is not ready herself, she said she actively advocates for the organ-donor program. Read article
HIV, but Not HHV-8, Found to Increase Risk of Pulmonary Arterial Hypertension
(AidsMap) -- Higher pulmonary artery systolic pressure levels - an independent risk factor for pulmonary arterial hypertension - have been found in an HIV-positive study group, as compared to HIV-negative controls. However, no association with human herpesvirus-8 (HHV-8) infection was found. The results were reported in the April 23rd issue of AIDS. Read article
"The Global Learning Series" to Raise Awareness of PAH in an Episode Called "Understanding The Heart"(Business Wire) Boca Raton, Fla. -- "The Global Learning Series," announced that the education-focused television program distributed to public television, will feature Pulmonary Arterial Hypertension (PAH) in an episode called "Understanding The Heart." The show will be distributed this fall to public television stations and several cable television stations throughout the country and globally on both the web and U.S. Government Voice of America (VOA) Television. Read article | |
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