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| Upcoming Events |
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Celebration of Life Party
August 9, 2008
Thornton, Colo.
Minnesota Support Group Picnic
August 9, 2008
Maplewood, Minn.
Exercise & Nutrition: Ways to a Healthier PH Lifestyle
August 12, 2008
Online
2008 Minnesota PHun Walk for a Cure
August 16, 2008
Andover, Minn.
Painting a Stroke of PHenomenal Hope
August 16, 2008
Oklahoma
Emergency 101: How to Prepare Yourself and Others for PH Emergencies
August 26, 2008
Online
2nd Annual Maine "Swinging for a Cure" Golf Tournament September 13, 2008 South Portland, Maine 1st Annual Pennsylvania Cure PH Golf Tournament September 13, 2008 Pittsburgh, Penn.
2nd Annual Walk and Roll for a Cure for Pulmonary Hypertension
September 20, 2008
Akron, Ohio
NC Cure PH Golf Tournament
September 27, 2008
Davie County, N.C.
Oklahoma Frisbee Golf Tournament
September 27, 2008
Oklahoma | |
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| 435 CAMPAIGN DISTRICT VISITS LEAD TO CO-SPONSORSHIP OF PH BILL |
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 The Tom Lantos PH Research and Education Act was introduced just two weeks ago and already has four co-sponsors in addition to Kevin Brady (R-TX) and Lois Capps (D-CA) ( pictured left) who introduced the bill.
Representatives James McGovern of Massachusetts, Jay Inslee of Washington, and Christopher Shays and Christopher Murphy both of Connecticut co-sponsored the bill within days of its introduction.
Several of the new co-sponsors have ongoing relationships with their constituents, who are members of PHA's grassroots advocacy network, the 435 Campaign. Campaign members have been out making face-to-face visits with their representatives and several have even spoken with their senators about introducing a companion bill.
The Tom Lantos PH Research and Education Act is gaining momentum, but we need YOUR help to take it to the next step. Be heard this election season - take action today!
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| AUGUST E-LEARNING EVENTS
EXERCISE & NUTRITION AND EMERGENCY 101 |
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| PH ON DEMAND WITH DR. GREGORY ELLIOT AND JOANNE SPERANDO-SCHMIDT |
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Periwinkle Films, in cooperation with PHA, has released the second installment of PH on Demand, a talk show-style prerecorded video webisode, or "PHodcast." The second PHodcast features an interview with Dr. Gregory Elliot on genetics and the PH Journeys story of Joanne Sperando-Schmidt. Watch PH on Demand and give us your feedback (in the questions tab). |
| BD SYRINGE RECALL FOR FLOLAN AND IV REMODULIN |
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| This recall relates to PH patients using specific lots of BD syringes for administration of Flolan and IV Remodulin. Most patients working with specialty pharmacies may have already received replacement syringes. For return and replacement, talk to your specialty pharmacy.
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| CONFERENCE SESSION AUDIO RECORDINGS AVAILABLE ONLINE |
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Were you unable to attend PHA's Conference in June? Were you there but want to hear sessions you missed? Here is your chance to learn more about treatments, research and living with PH because most of the Conference sessions are now available for listening online.
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 PH IN THE NEWS |
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Influenza Guidelines Updated
(Medscape Medical News) -- Advisory Committee on Immunization Practices (ACIP) has issued updated guidelines for prevention and control of influenza. The 2008 recommendations include new and updated information since the 2007 recommendations by the Centers for Disease Control and Prevention's ACIP regarding the use of influenza vaccine and antiviral agents. Read article (requires free registration)
Transplant Games Celebrated Success of Organ Donations (Nephr Online) -- Renowned for its champion professional sports teams and its pioneering role in organ transplants, Pittsburgh was proud to host the 2008 National Kidney Foundation U.S Transplant Games. More than 1,300 transplant recipient athletes from 48 teams converged on the Steel City to compete in 12 different sports. The four-day biennial event celebrated the success of transplantation by showcasing the athletic achievements of recipients, honoring donor families and living donors, and highlighting the critical need for organ and tissue donation. Read article |
| Thinking about leaving a Legacy Gift but confused by all the different options?
Visit PHA's Legacy website and use this simple chart to compare your goals with various gift options. | |
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