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| Upcoming Events |
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Emergency 101: How to Prepare Yourself and Others for PH Emergencies
August 26, 2008
Online
2nd Annual Maine "Swinging for a Cure" Golf Tournament September 13, 2008 South Portland, Maine 1st Annual Pennsylvania Cure PH Golf Tournament September 13, 2008 Pittsburgh, Penn.
2nd Annual Walk and Roll for a Cure for Pulmonary Hypertension
September 20, 2008
Akron, Ohio
Hike for Lung Health with the "PHandtastic PHew!"
September 21, 2008
Chicago, Ill.
NC Cure PH Golf Tournament September 27, 2008 Davie County, N.C. Oklahoma Frisbee Golf Tournament
September 27, 2008 Oklahoma
4th Annual NY Fun Walk for PH
October 4, 2008
Long Island, N.Y.
Central Penn's PH Awareness Walk
October 4, 2008
Penn.
Georgia Fun Walk
October 18, 2008
Ga.
A Colorado PH Fundraiser: An Evening in Tuscany
October 18, 2008
Lakewood, Colo.
Laughter, Love & Lavendar
October 18, 2008
Seattle, Wash. | |
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| Vol 9/Number 17 |
August 22, 2008 |
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| PH TEEN INSPIRES COMMUNITY AND RAISES THOUSANDS FOR PHA |
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 Using her passion for art to make a difference in the fight against PH, Lauren Johnson, a 16-year-old PH patient, came up with the idea of organizing a "Painting a Stroke of PHenomenal Hope" event where donated art could be auctioned. She designed the logo for the event, which her mother Melissa is sporting in the picture here with Lauren.
Before the event Lauren did a lot of publicity and awareness-raising in her community. She obtained press coverage in three newspaper articles and raised $3,000 in sponsorships. Last weekend, she attracted 250 attendees to her art auction event in Edmond, Okla., which included carnival games, square dancers, and a bake sale. At last count, she had raised $11,000 for PHA, but checks are still coming in.
Always thinking beyond herself, Lauren did not organize the event in honor of her own struggle with PH, but in honor of her 11-year-old PHriend Julian Willis (who she met at the 2008 PHA Conference and has the same PH specialist Dr. Dunbar Ivy) and in memory of a local PHriend Katie Hill who passed away in December. In fact, just a week before hosting this large event she travelled to Colorado to attend a House Party in honor of Julian.
Lauren has some t-shirts left over in kids sizes and a few in L, XL and 2XL. Contact her at artistlauren922@hotmail.com if you're interested -- $10 while supplies last.
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| PREPARING FOR PH EMERGENCIES E-LEARNING EVENT TUESDAY! |
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Emergency 101: How to Prepare Yourself and Others for PH Emergencies
August 26, 3-4 pm ET Online Q&A Chat
Continuing PHA's monthly e-Learning Events, Dr. Debbie Levine and R.N. Marilyn Schmidt will answer questions about situations when pulmonary hypertension can become an emergency.
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 2008 SCIENTIFIC SESSIONS MATERIALS AVAILABLE ONLINE |
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 The Scientific Sessions at PHA's Conference in June were marked by robust discussion and information sharing among members of the PH medical community. To facilitate the continuation of this discussion and discovery, the session PowerPoint presentations and 65 abstracts are available online. |
| AUDIO RECORDING OF CONFERENCE FAVORITE -- JOURNEYS LUNCHEON -- AVAILABLE ONLINE |
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 Did you know that the Conference audio recordings include the Conference favorite, the Journeys Luncheon, where PH doctors and their patients shared their journey together, including 10-year-old Darby Hetrick ( pictured right with partents)? You can also hear the moving journeys shared by Joe Barnes and Donna Pederson.
The recordings also include the three keynote speeches by Carl Hicks and Drs. Vallerie McLaughlin and Michael McGoon. In fact, you can listen to all the plenaries and most of the sessions.
Conference attendee Amanda McKee says, "It's fabulous! I've downloaded a lot of (the audio recordings from Conference) onto my iPod and listen to it while working out or in the car."
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 PH IN THE NEWS |
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Joyful Wedding for Lung Transplant Recipient
(SF Gate) San Francisco, Ca. -- Nearly five years ago, when Carrie Shellhammer was dying at UCSF Medical Center, she and her mother selected songs for her funeral, which they assumed was just weeks away. Read article
Exercise-induced Pulmonary Hypertension Common in Systemic Sclerosis(medicexchange.com) -- Pulmonary arterial hypertension (PAH) can often become apparent during exercise testing in patients with systemic sclerosis, according to a report in the July issue of Chest. Read article
EPIX Pharmaceuticals Initiates Phase 2b Right-Heart Catheterization Study of PRX-08066 in Patients with Chronic Obstructive Pulmonary Disease and Moderate-to-Severe Pulmonary Hypertension (BUSINESS WIRE) Lexington, Ma. -- EPIX Pharmaceuticals, Inc., a biopharmaceutical company focused on discovering and developing novel therapeutics through the use of its proprietary and highly efficient in silico drug discovery platform, announced that it has initiated its Phase 2b right-heart catheter study of PRX-08066 in patients with chronic obstructive pulmonary disease (COPD) and moderate-to-severe pulmonary hypertension (PH). Read article
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| UPCOMING BUILDING MEDICAL EDUCATION IN PH EVENT |
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3rd Annual Northern New England Pulmonary Hypertension Symposium
September 29, 2008
Dartmouth-Hitchcock Medical Center
Woodstock, Vt.
Pulmonary Hypertension is increasingly recognized as an important factor causing morbidity and mortality. Participants will be able to recognize the challenges in diagnostic and therapeutic strategies, understand the possibility of lung transplantation and appreciate research in newer PH pharmacotherapies. Both CME and CEU credits are available. Contact Sarah Castle at 603-653-1512. View brochure (PDF) | |
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