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| Upcoming Events |
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NC Cure PH Golf Tournament
September 27, 2008
Davie County, N.C.
Oklahoma Frisbee Golf Tournament
September 27, 2008
Oklahoma
4th Annual NY Fun Walk for PH
October 4, 2008
Long Island, N.Y.
Central Penn's PH Awareness Walk
October 4, 2008
Penn.
Georgia Fun Walk
October 18, 2008
Ga.
A Colorado PH Fundraiser: An Evening in Tuscany
October 18, 2008
Lakewood, Colo.
Laughter, Love & Lavendar
October 18, 2008
Seattle, Wash.
The PHenomenal Hope Walk and Run
October 25, 2008
Littleton, N.H.
Eighth Annual Race Against PH
November 2, 2008
Stanford, Calif.
2nd Annual N. Texas PH Fun Walk
November 8, 2008
Euless, Texas
Arizona's 4th Annual Cure PH Golf Tournament
November 15, 2008
Pheonix, Ariz.
Escape to Vegas - A PHA Fundraiser
November 21, 2008
Sarasota, Fl.
2nd Annual Bowl PHor Cure
November 22, 2008
Wapingers Falls, N.Y. | |
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| Vol 9/Number 19 |
September 23, 2008 |
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Awareness Month Activity
RAISE AWARENESS AT HOME AMONG YOUR FRIENDS & FAMILY |
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Raising awareness about PH is as simple as writing your PH story online, adding a picture, and sending a link to your friends and family. Our Web of Friends FirstGiving pages are easy to setup, allow you to share your story with your friends and family all at once, and give them the opportunity to show you their support by donating to the cause.
Participate in PHA's House Party Day of Action on Nov. 1 and Beyond
Help kick off PH Awareness Month by holding one of the many house parties that will take place across the U.S. on Saturday, November 1. With PHA's Cookin' Up a Cure House Party Guide you'll know everything you need to know to hold a party in your home. House parties are fun for your friends and family and raise awareness and funds for PH.
And if you party up on Nov. 1, you'll be helping PHA raise awareness on a national level by adding your voice to your fellow PHers across the country. Busy Nov. 1? You can hold a House Party anytime in November, or throughout the year.
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| E-LEARNING EVENT FOR SPECIAL EVENT PLANNERS NEXT WEEK ON SEPT. 30! |
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 September e-Learning Event
Media Promotion for Special Events: Make the Most of It!Tuesday, September 30, 7 pm ET
webinar (audio & web)
Special Event Organizers: You're organizing a great event, so tell the world about it! Learn how to promote your event and spread awareness of PH through the media. PHA's Deirdre Farrell and Nathan Barker will share tips and insights on how to use the PHAware program to make contact with the media. They will be joined by a panel of guests who will answer questions about their own experiences utilizing the media to promote Special Events.
PHA's e-Learning Events are made possible through unrestricted educational grants from Eli Lilly & Company and Pfizer Inc. |
 PH IN THE NEWS |
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Inhaled Treprostinil New Drug Application Filed by FDA
(MarketWatch) Silver Spring, Md. -- United Therapeutics Corporation and its wholly-owned subsidiary Lung Rx, Inc. announced today that the U.S. Food and Drug Administration (FDA) has accepted for review the New Drug Application (NDA) for inhaled treprostinil for the treatment of pulmonary arterial hypertension. Read article
Skin-Hardening Disease May Hit Heart, Lungs (news-journalonline.com) -- Scleroderma, a collagen, vascular and autoimmune disease, got its name from the Greek words "skelero" hard, and "derma," skin. It is a rare disease but can affect people of any age or gender, most commonly women 30 to 50 years old. Read article
Utah Justices: Pharmacists Could be Negligent if They Dispense Withdrawn Drugs (Salt Lake Tribune) -- Utah pharmacists could be considered negligent for dispensing drugs that have been withdrawn from the market, the Utah Supreme Court said in an opinion Tuesday on a fen-phen case, opening the possibility their job duties will be redefined in a trial court. Read article
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| PHA 2007 AUDIT & FORM 990 AVAILABLE |
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As part of PHA's policy of financial transparency to our donors and to the public, our annual reports, audits and tax filings (Form 990s) are posted on the website as they become available. The 2007 reports are now available. |
| PHA SEEKS INTERNS TO JOIN US IN THE FIGHT |
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Learn about seven different opportunities to help change the history of this illness. Hear from our summer interns about their PHA experience. Apply today -- or refer our internship program to an interested friend or family member!
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Launch a Web of Friends FirstGiving Page