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Houston, Texas

Schedule of Events

8:30 a.m. - 10:00 a.m.   Registration and Continental Breakfast
8:30 a.m.   Kids' Room Opens
9:00 a.m. - 9:45 a.m.  

Pre-Forum Support Group Sessions (Concurrent)

  • Sharing Stories: My Journey with PH and What Do I Do Now that I'm Diagnosed? (<2 years diagnosed)
  • Sharing Tips: Coping Through the Years – Tips for Ongoing Support for PH Patients (>2 years diagnosed)
  • Loving Someone with PH: A Support Group for Family Members and Friends
  • Caring for a Child with PH: A Support Group for Parents
9:45 a.m. - 10:00 a.m.   Break
10:00 a.m. - 11:00 a.m.  

General Session:
Official Opening and Welcome and Specialized Topic Presentation

  • Diagnosis: How is PH Diagnosed?
  • The Different Types of PH
11:00 a.m. - 11:20 a.m.   Coffee Break
11:20 a.m. - 12:10 p.m.  

Morning Breakout Sessions - Group A (Concurrent)
Medically Led

  • Connective Tissue Disease & PH
  • Exercising and Dining Better
  • Preparing for Travel and Emergency Situations with Adult and Pediatric PH Patients
  • Workability, Insurance and Disability with PH
12:10 p.m. - 12:15 p.m.   Break
12:15 p.m. - 1:05 p.m.  

Morning Breakout Sessions - Group B (Concurrent)
Medically Led

  • Diagnostics, Tratamientos y Viviendo con HP - Español
  • Lung Transplantation for Pediatric and Adult PH Patients
  • Preparing for Travel and Emergency Situations with Adult and Pediatric PH Patients
  • PH & Other Associated Conditions: Lung Disease, Left Heart Disease & CTEPH
1:05 p.m. - 1:15 p.m.   Break
1:15 p.m. - 2:15 p.m.   General Session:
Networking Lunch
2:15 p.m. - 2:25 p.m.   Break
2:25 p.m. - 3:15 p.m.  

Afternoon Breakout Sessions (Concurrent)
Patient and Caregiver Led

  • A Patient-to-Patient Guide for Living with PH
  • Can Your Hear Me Now?: Communicating about PH
  • The Caregiver's Guide to Surviving PH
3:15 p.m. - 3:30 p.m.   Coffee Break
3:30 p.m. - 4:30 p.m.  

General Session:
Specialized Topic Presentation

  • Current Therapies and Management of PH: How Does My Doctor Choose the Right Medication for Me?
  • What's on the Horizon?: Clinical Trials & Drug Development
4:30 p.m.   Program Concludes

DIAMOND
SUPPORTER

PLATINUM
SUPPORTER

GOLD
SUPPORTER

SILVER
SUPPORTER

Actelion Pharmaceuticals US, Inc. Gilead Sciences, Inc. United Therapeutics Corporation Bayer HealthCare
This is a program of the PHA Medical Education Fund, made possible through unrestricted educational grants from our supporters.

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.