OTR Web Banner 748x156

San Diego, Calif.

Schedule of Events

8:30 a.m. - 10:00 a.m.   Registration and Continental Breakfast
8:30 a.m.   Kids' Room Opens
9:00 a.m. - 9:45 a.m.  

Pre-Forum Sessions (Concurrent)

  • Sharing Stories: My Journey with PH and What Do I Do Now that I'm Diagnosed? (<2 years diagnosed)
  • Sharing Tips: Coping Through the Years – Tips for Ongoing Support for PH Patients (>2 years diagnosed)
  • Loving Someone with PH: A Support Group for Family Members and Friends
  • Caring for a Child with PH: A Support Group for Parents
9:45 a.m. - 10:00 a.m.   Break
10:00 a.m. - 11:00 a.m.  

General Session:
Official Opening and Welcome

  • Diagnosis: How is PH Diagnosed?
  • PH Treatment Choices: Which Treatment is the Best for Me?
11:00 a.m. - 11:20 a.m.   Coffee Break
11:20 a.m. - 12:10 p.m.  

Morning Breakout Sessions - Group A (Concurrent)

  • Exercising, Pulmonary Rehab & O2 Issues with PH
  • Planning for Emergency Situations: Adult & Pediatric PH Patient Responsibilities
  • PH Due to Chronic Blood Clots – CTEPH
  • Traveling with Pediatric and Adult PH Patients
12:10 p.m. - 12:15 p.m.   Break
12:15 p.m. - 1:05 p.m.  

Morning Breakout Sessions - Group B (Concurrent)

  • Connective Tissue Diseases & PH
  • Eating Better – Diet & Fluid Restriction
  • Exercising, Pulmonary Rehab & O2 Issues with PH
  • Women's Health Issues & PH: For Adult and Pediatric Patients
1:05 p.m. - 1:15 p.m.   Break
1:15 p.m. - 2:15 p.m.   General Session:
Networking Lunch
2:15 p.m. - 2:25 p.m.   Break
2:25 p.m. - 3:15 p.m.  

Afternoon Breakout Sessions (Concurrent)

  • A Patient-to-Patient Guide for Living with PH
  • Can Your Hear Me Now?: Communicating about PH
  • The Caregiver's Guide to Surviving PH
3:15 p.m. - 3:30 p.m.   Coffee Break
3:30 p.m. - 4:30 p.m.  

General Session:
Specialized Topic Presentation

  • Long-Term PH Management: Following Up and Modifying Treatments
  • What's on the Horizon?: Clinical Trials & Drug Development
4:30 p.m.   Program Concludes

DIAMOND
SUPPORTER

PLATINUM
SUPPORTER

GOLD
SUPPORTER

SILVER
SUPPORTER

Actelion Pharmaceuticals US, Inc. Gilead Sciences, Inc. United Therapeutics Corporation Bayer HealthCare
This is a program of the PHA Medical Education Fund, made possible through unrestricted educational grants from our supporters.

 

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

For the best viewing experience of this site, it is recommended that you use Internet Explorer 8 or 9 or Firefox.

© 2014 Pulmonary Hypertension Association. All Rights Reserved.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy   Virtual Tour of Website    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.®

NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.