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San Diego, Calif.

Schedule of Events

Read the program book (PDF)

8:30 a.m. - 10:00 a.m.   Registration and Continental Breakfast
8:30 a.m.   Kids' Room Opens
9:00 a.m. - 9:45 a.m.  

Pre-Forum Sessions (Concurrent)

  • Sharing Stories: My Journey with PH and What Do I Do Now that I'm Diagnosed? (<2 years diagnosed)
  • Sharing Tips: Coping Through the Years – Tips for Ongoing Support for PH Patients (>2 years diagnosed)
  • Loving Someone with PH: A Support Group for Family Members and Friends
  • Caring for a Child with PH: A Support Group for Parents
9:45 a.m. - 10:00 a.m.   Break
10:00 a.m. - 11:00 a.m.  

General Session:
Official Opening and Welcome

  • Diagnosis: How is PH Diagnosed?
  • PH Treatment Choices: Which Treatment is the Best for Me?
11:00 a.m. - 11:20 a.m.   Coffee Break
11:20 a.m. - 12:10 p.m.  

Morning Breakout Sessions - Group A (Concurrent)

  • Exercising, Pulmonary Rehab & O2 Issues with PH
  • Planning for Emergency Situations: Adult & Pediatric PH Patient Responsibilities
  • PH Due to Chronic Blood Clots – CTEPH
  • Traveling with Pediatric and Adult PH Patients
12:10 p.m. - 12:15 p.m.   Break
12:15 p.m. - 1:05 p.m.  

Morning Breakout Sessions - Group B (Concurrent)

  • Connective Tissue Diseases & PH
  • Eating Better – Diet & Fluid Restriction
  • Exercising, Pulmonary Rehab & O2 Issues with PH
  • Women's Health Issues & PH: For Adult and Pediatric Patients
1:05 p.m. - 1:15 p.m.   Break
1:15 p.m. - 2:15 p.m.   General Session:
Networking Lunch
2:15 p.m. - 2:25 p.m.   Break
2:25 p.m. - 3:15 p.m.  

Afternoon Breakout Sessions (Concurrent)

  • A Patient-to-Patient Guide for Living with PH
  • Can Your Hear Me Now?: Communicating about PH
  • The Caregiver's Guide to Surviving PH
3:15 p.m. - 3:30 p.m.   Coffee Break
3:30 p.m. - 4:30 p.m.  

General Session:
Specialized Topic Presentation

  • Long-Term PH Management: Following Up and Modifying Treatments
  • What's on the Horizon?: Clinical Trials & Drug Development
4:30 p.m.   Program Concludes





Actelion Pharmaceuticals US, Inc. Gilead Sciences, Inc. United Therapeutics Corporation Bayer HealthCare
This is a program of the PHA Medical Education Fund, made possible through unrestricted educational grants from our supporters.


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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.