>>Watch a webinar about working with the media presented by experts!


Use this guide for comprehensive, step-by-step instructions on how to raise awareness of PH through the media. You’ll find information on sharing your personal story, promoting events and meetings and airing public service announcements. Plus, you’ll find tips and resources that will help you as you contact your local news outlets.

To order free copies of PHA's Press Kit or the Media Action Network Media Guide, contact us by writing to or call 301-565-3004 x753. 

The Basic Steps
Start here to master the basics of contacting the media and sharing your story.
Webinars and Other Tools
Learn tips about how to contact the media, how to work with reporters and how to write effective press releases and PSAs.
Media and your Event or Support Group Meeting
Draw participants to your Special Event or support group meeting by promoting it in the media. Or, encourage reporters to cover PH by inviting them to your event.
Letters to the Editor and Op-Eds
Get the word out about an important PH-related event or issue in an easy, straightforward way.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.