Empowered Patient Online Toolkit

Between tracking medication dosages, pharmacy numbers, insurance plans and more, pulmonary hypertension can be a time consuming disease. By taking the time to plan ahead, you can get and stay organized. Coordinating your healthcare doesn't have to stand in the way of doing the things you love.

The Empowered Patient Online Toolkit was designed by experienced PH patients and healthcare professionals to help you create your own PH-specific medical binder. Download the resources below, personalize them, and then either save them to an electronic flash drive or print them out and store them in a three-ring binder with tabs. Bring your binder with you to all appointments and any time you are admitted to the hospital.

Very Important Documents

Questions and Notes


Medical Records



Education and Resources

View the Complete Toolkit

(not editable)


Adobe Acrobat Reader is required to view and save Online Toolkit files. This is a free program available from the Adobe website. For step-by-step instructions on downloading files, visit our Toolkit Help page.


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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.