Our Journeys

Creative expressions:

Janet Stone's Painting - "Kitchen Conductor"
Janet Stone's Painting - "Kitchen Conductor"


Share your story

For some in the PH community, sharing their story is best accomplished via artistic expressions such as writing, painting, recording music or videos. These Our Journeys submissions are organized into categories to enable you to easily browse and find the stories you’re most interested in:

Our Journeys Spotlight

“Five years to live. That's the number the doctors recently gave me. That's a very scary number when you have two young children.”

Meet Lynda Gettier


“Whenever we can put a face to PH we have the potential to help many.”
--Jeannette Morrill

Share your journey with PH with reporters. Find out how!

Webinar: Creative Expressions for Well Being

Important medical research links creative endeavors, such as expressive writing or painting, to reduced symptoms and improved health.

Find out more

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.