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Our Journeys

Memorials

Many Our Journeys stories are memorials to members of the PH family who have left behind a legacy of hope and love. Learn more about their inspiring lives from their friends and families here on these Journeys Memorials pages.

Click the linked names to read the full Journeys

Robert Christensen
By his mother and caregiver, Gail Christensen
My son, Robert, was diagnosed with PPH on May 19, 1997, by accident. On May 16, I took him to the doctor for strep throat and he started taking amoxicillin. When I woke him up for school the next day, he started complaining that his legs were bothering him and he couldn’t walk.

Michelle Foulkes
As told by Gerald Foulkes
Hello, my name is Gerald, and this story is about my late wife, Michelle. Michelle's Journey started when she was told at the age of 20 that she had PH. She was placed on oxygen and remained on until her passing on Dec. 23, 2012. Michelle and I met on Nov. 6, 2009, which was one of the happiest days of my life. It was love at first sight for both of us.

Alyssa Johnson
As told by her mother
On January 4th 2014 my daughter Alyssa and I played with our dogs, wrestled around and stayed up late watching scary movies. On January 5th my husband thought he heard her throwing up. I went downstairs to check on her. I found her in the downstairs bathroom having what I thought may be a seizure. We rushed her to the local ER. They diagnosed her with pneumonia.

Christiane Kaidi
As told by her daughter, Azyadée Kaidi
It is always a difficult task for a daughter to speak about the passing of her mother, but it can also be something really special because it gives you the chance to celebrate all the good things that came along in a lifetime of sharing, growing, fighting and winning many battles.

Dorothy Nash
By caregiver Regina Nash
My mother Dorothy Nash wrote so many stories on the discussion boards and made so many friends. With great sadness my wonderful mother passed away February 18, 2014. She had PH since 1999 and shocked the doctors how well she did but her lungs couldn't get rid of the CO2 and that ultimately took her to live with our Savior and her husband Reggie.

Lori Hudson
As told by her daughter, Jami Kellogg
Lori E. Gray Hudson was a daughter, sister, mother, wife, and friend just like any other normal person. She had a caring generous heart, was a friend to anyone that knew her, and had a love for her family and those she loved that was extraordinary. She went out of her way to please those around her and it made her happy to do so. Her love for the Lord shined on her face and in her life, her faith was unshakable no matter what trouble was presented to her. I am the daughter of Lori and would like to share her story of hope with you.

Amy Caroline Stamp
As told by her daughter, Leah Stamp
My mother was diagnosed with primary pulmonary hypertension when I was 13 years old. She lived with her condition for nearly seven years, far surpassing all of the medical community's expectations. Her positive energy and refusal to lie down and let PH run her life have inspired me in several different ways.

 


PHA does not recommend or endorse any specific physicians, products, procedures, opinions or other information that may be mentioned in these stories. Reliance on any information appearing on this website is solely at your own risk. Stories shared on this website are general information and are not intended to substitute for informed professional advice. Each person is different and as such, may respond differently to treatments, thus the stories are shared with the hope that they may be helpful for those who choose to take a greater responsibility for their own health. Always seek help from a health professional.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.