OUR JOURNEYS

Patient story

Becca Hubbard

"Every night, I pray for a cure, better treatment and better diagnoses to help everyone who has this."

When I was two, I was diagnosed with asthma. So throughout my life, whenever I had breathing trouble, it was always my asthma, and it was always easily treated. In June 2012, I noticed I was getting winded and very tired with minimal activity. The weather was extremely hot and humid, so I chalked it up to my asthma.

One night, I was unable to walk up one flight of stairs at my house without having to sit down halfway up because I was so out of breath and tired. I was scheduled for a minor surgery in a couple days, so I decided to get it checked out, just to be safe. My sister took me to the emergency room the next day because my family doctor couldn't get me in for a visit. I went in to the ER thinking they'd give me an albuterol treatment and maybe some steroids and all would be well. I left the hospital eight days later with a diagnosis of pulmonary arterial hypertension and treatment regimen IV Remodulin. It turned my world upside down.

So I'm going on two months with this diagnosis, and I'm still adjusting every day. Sometimes I wish they've misdiagnosed me and everything will go back to normal. But I have a new normal to get used to. My family and friends have been incredibly supportive, so I'm fortunate that I have them to help me. Every night, I pray for a cure, better treatment and better diagnoses to help everyone who has this.

 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.