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Patient story

Hasnaat Naushahi

Hi. My Name is Hasnaat Naushahi. I was born with a congenital heart disease. I was diagnosed with pulmonary hypertension in 2005 at the Royal Hallamshire Hospital in Sheffield [England]. I am on Bosentan, Tracleer. I’m taking a monthly blood test in Sheffield. Pulmonary Hypertension really affects my family in a bad way because I’m always in and out of hospitals in the cold weather and I always have really bad chest infections. I get blue in my lips, fingers, fingernails and toes.

 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.