Patient Story

Lynda Gettier

"Five years to live. That's a very scary number when you have two young children."

Five years to live. That's the number the doctors recently gave me. That's a very scary number when you have two young children. Pulmonary hypertension (PH) has become an unwelcome intruder into our lives. Right now my pulmonologist is trying to find a reason for it. I am lucky; I live in a town that has a specialist who handles only patients with PH, so all the tools we need are right here at my local hospital. The right and left sides of my heart are both enlarged. My lungs feel like they are on fire when I walk up stairs or long distances. My 3-year-old just wants mommy to play; mommy prays she can too. I am tired and scared. I am determined to see both of my children graduate from high school, and I will! I really will!



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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.