OUR JOURNEYS

Patient story

Morgan Mattix

My name is Morgan and I was diagnosed with pulmonary hypertension at age 14, while I was in middle school. It was an extremely difficult time for me. Before I was diagnosed, I was undergoing treatment for asthma. I had trouble doing any school or physical activities. It wasn’t until I was walking up the stairs to go to class that I had almost passed out that I realized something wasn’t right. The doctors came in from there.

From that day on, I have been on all kinds of medications and treatments. Oxygen at night. My condition got a little better, but right now it's not so good. My pressures are still high, and not where my cardiologist wants them to be. I keep taking my meds and hope it all works out for the best. I try to keep a brave face, but it’s hard from time to time.

Thank you for all the support you have given me. Sincerely, Morgan M.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.