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Patient story

Pam Bagwell

My name is Pam Bagwell. I was diagnosed in 2001 with primary pulmonary hypertension, which is low blood pressures in the lungs, not high. I have to take Ventavis. Before that I was on Remodulin SubQ and I am still on Tracleer. I see the lung doctor about every month to three months. My heart doctor, unless I have problems, I see him every six months. My heart number is 90 and I went from 140 in my pulmonary waves to the 70 or 100. So the prayers and medicines I take ahve helped me tremendously.

There is hope for all who have disease, especially lung disease like ours. I go to the PAH meeting at Lexington Hospital in West Columbia when they have them. I am trying to plan to go to Sparantburg. I wear oxygen at night because my oxygen levels get down to 75 and that makes the heart pump even harder not getting the oxygen.

I want to write my Congressmen and other representatives but I just don't know what to say. How to shorten the disease I have with all the test and medicine and doctors I have seen over the years.

Now found out I have Fibromyalfia. When I was on Remodulin it caused Rhumethyroid arthiritis then I got off of the Remodulin and now I have Fibro. I don't understand what is going on with my body. I ahve CHF from the PPH, which means the right side of my heart is swollen and I get fluid built up so on medicine for that two different fluid pills.

Well, that's all I feel up to writing.

Thanks,
Pam Bagwell

 

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.