Patient story

Patricia Lawson

I was diagnosed with systemic lupus in 1988 and have developed many other diseases and complications subsequently. Several years ago I was diagnosed with PAH. To my knowledge there is no support or advocacy group in my city. I need to talk to others who have PAH; I need to understand how to live with this disease. I have the appropriate doctors—a rheumatologist and a lung specialist—but there is no PAH specialist here. I am currently on Tracleer with no improvement after six months. Can you connect me with others who have PAH? Thanks.


FacebookTwitterInstagram iconLinkedInYouTube

For optimal viewing of, please use a standards-compliant browser such as Google Chrome or Firefox.

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
    Privacy Policy    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.® | © 2016 Pulmonary Hypertension Association. All Rights Reserved.


The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.