Empowered by Hope Podcasts

Caregiver and father Steve Van Wormer hosts these podcasts dedicated to raising pulmonary hypertension awareness. Each podcast episode contains an impactful and insightful conversation with members of the PH community.

To Listen: Click on the links below
To Download: To save a copy on your computer, right click on link and choose "Save Target As/Save Link As.”

Dr. Laura D'Anna

In the 10th episode, Steve talks with Dr. Laura D'Anna. Laura's sister, Rachael Hoyt, was diagnosed with PH in 1993 – a time when little was known about PH and no treatments existed. Unfortunately, Rachael lost her battle with PH in 1995. Dr. D'Anna discusses this great personal loss and how her PH journey has evolved into an ongoing commitment to the endeavor of eradicating PH. Laura joined PHA's Board of Trustees in 2006.
PHA Podcast Episode 10 Dr. Laura D'Anna

Lucas Van Wormer in the Radio Disney Studio

In this Special Live Edition of The PHA Podcast we bring you an episode of Radio Disney's THE PLAYGROUND hosted by LaFern Cusack. 12 year old, pediatric PH patient, Lucas Van Wormer, and his Dad, Steve (PHA Board of Trustee) discuss Lucas' PH journey which led to his diagnosis and UCLA Mattel Children's Hospital. They also discuss how PHA's new national PSA campaign started, World PH Day and their hope for the future.
PHA Podcast Episode 9 Lucas & Steve Van Wormer on Radio Disney

Debbie Castro 

In the 8th episode, Steve talks with Debbie Castro, PHA's Senior Director, Volunteer Services. One of PHA's earliest staff members, Debbie is also a long-term caregiver. She discusses her connection to pulmonary hypertension, which started long before she began working at PHA when her sister Alex was diagnosed with PH in the late 90s.
PHA Podcast Episode 8 Debbie Castro

Dunbar Ivy, MD

In the 7th episode, Steve sits down with Dr. Dunbar Ivy, MD, at the 7th International Neonatal & Childhood Pulmonary Vascular Disease Conference in San Francisco, Calif. Dr. Ivy discusses his work in the field of PH pediatrics, the ways pediatric pulmonary hypertension is treated around the globe, PHA’s new PH Care Centers program, and he reflects on the work of Dr. Robyn Barst and her impact on pediatric PH research and treatment.
PHA Podcast Episode 7  Dr. Dunbar Ivy

Lucas Van Wormer

In this Special Live Edition of The PHA Podcast we hear 11 year old, pediatric PH patient, Lucas Van Wormer, giving the keynote address at the inaugural “O2 Breathe San Francisco Bay Area Gala.” Lucas, who is introduced by his mother, Marina, talks about his PH Journey, his love for UCLA and Dr. Juan Alejos, the importance of pediatric PH research, his first experience at a summer camp just for kids with heart and lung disease and his hope for the future. Lucas also premieres his brand new Pediatric PH Research PSA to a sold out crowd.
PHA Podcast Episode 6 Lucas Van Wormer

 Jack Stibbs

In the 5th episode, Steve sits down with outgoing PHA Board Member, Jack Stibbs. Jack’s daughter, Emily, was diagnosed with PPH in 1997. Jack organized PHA’s first and largest research fundraiser. His now annual Woodland CrawPHish Festival has raised over $2,000,000 for research for pulmonary hypertension.
PHA Podcast Episode 5 Jack Stibbs

 Dr. Juan Alejos

On the 6 year anniversary of his son Lucas’ PH diagnosis, Steve sits down with Dr. Juan Alejos, the founder the Pediatric Pulmonary Hypertension Program at Mattel Children’s Hospital at UCLA. Dr. Alejos initiated the program in 2005 to establish treatment of PH in both children and adults. Dr. Alejos is also the founder and President of Hearts with Hope, a nonprofit foundation that sends medical teams to Latin American countries to provide medical and humanitarian support to children with congenital heart disease.
PHA Podcast Episode 4 Dr. Juan Alejos

Dorothy Olson

Dorothy Olson was one of the founders of PHA. Dorothy was diagnosed with chronic thromboembolic pulmonary hypertension. She had surgery in 1995 to remove the blood clots in the pulmonary arteries. She sat down with Steve and talked about the beginning days of the Pulmonary Hypertension Association and how much the organization has grown.

PHA Podcast Episode 3 Dorothy Olson

Judy SimpsonEd Simpson

Judy and Ed Simpson are some of PHA’s original caregivers and cofounders of the Pulmonary Hypertension Association. Both sit down with Steve to talk about their roles as caregivers, the origins of the first PHA International Conference and the beginning days of the Pulmonary Hypertension Association.

PHA Podcast Episode 2 Judy & Ed Simpson

Pat and Jerry Paton

Pat Paton was diagnosed with pulmonary hypertension in 1987 and she, along with her husband Jerry, were some of PHAs original cofounders. Both sit down with Steve to talk about Pat’s misdiagnosis, eventual diagnosis, their lives since and the beginning days of the Pulmonary Hypertension Association.

PHA Podcast Episode 1 Pat & Jerry Paton

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

801 Roeder Road, Ste. 1000, Silver Spring, MD 20910   Patient-to-Patient Support Line: 1-800-748-7274
Webmaster@PHAssociation.org
    Privacy Policy   Virtual Tour of Website    Provide Feedback & Report Bugs

Designed by Matrix Group International, Inc.® | © 2014 Pulmonary Hypertension Association. All Rights Reserved.

NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.