Submit Your Journeys Story

Thank you for contributing your story to the growing history of the PH community. This is a space where you can share any or all aspects of your life as a person touched by pulmonary hypertension.

As you share your story, think about what others in the community can learn from your experience - especially newly diagnosed patients. If you need some inspiration to get started, consider writing about:

  • Your diagnosis process
  • What medications you/your loved one/your friend takes
  • How has PH affected you and your family
  • How you first connected with the PH community
  • How you have participated in the PH community (i.e. Support Groups, advocacy, awareness activities, fundraisers, Special Events, etc...)
  • Your experience with PHA Conferences or other PHA events

Thanks for sharing your story. 

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Fill out my online form.

“S.O.B.” Check out Leslie Polss’ cartoons on being a PH patient and “short of breath.”

Watch videos of PHers sharing their stories at PHA’s International Conference and other events.
Video Journeys

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs.

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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.