OUR JOURNEYS

Sharing lives and building community

The pulmonary hypertension community is a quiltwork of personal stories. Everyone’s experience with PH is different, but we also have commonalities that bind us together and create a unique sense of hope and community. The Our Journeys campaign empowers members of the PH community to share their stories with each other so that we can experience the difficulties, the joys and the triumphs of our lives together.

To newly diagnosed patients, these stories provide hope. They also provide serious but welcome information about what it means to live with this illness on a day-by-day basis.

Journeys stories touch the hearts of political leaders, media reporters and good-hearted people who have never heard of PH. Journeys stories create allies in our fight for a cure.

Share your story

Empowered by Hope Podcasts

Join PH parent Steve Van Wormer as he sits down with members of the PH community for an hour long conversation about their experiences with PH.

Listen or download the podcasts

Browse Our Journeys by category:

 

 

 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.