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Our Journeys

The voice of the pulmonary hypertension community is built on the personal stories of individuals living with PH, their family and friends, and their medical professionals. Each perspective adds a piece to the puzzle. Together the pieces form a complete picture allowing us to experience the difficulties, joys and triumphs of living with PH.

Our Journeys stories also create allies in our fight for a cure by educating and touching the hearts of those outside our community: political leaders, media reporters and good-hearted people who have never heard of PH.


PHA does not recommend or endorse any specific physicians, products, procedures, opinions or other information that may be mentioned in these stories. Reliance on any information appearing on this website is solely at your own risk. Stories shared on this website are general information and are not intended to substitute for informed professional advice. Each person is different and as such, may respond differently to treatments, thus the stories are shared with the hope that they may be helpful for those who choose to take a greater responsibility for their own health. Always seek help from a health professional.

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The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. PHA does not endorse or recommend any commercial products or services.

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.