Our Journeys

View Full Cartoon Leslie Polss shares her PH journey story through her cartoons. View All Leslie's Cartoon Journeys

PHA’s Our Journeys campaign allows the PH community to share their stories and raise awareness. We want to hear your story! That means all of the downs and all of the ups, the challenges as well as the successes. No story is too small to share with us.

To newly diagnosed patients, these stories provide hope. They also provide serious but welcome information about what it means to live with this illness. Journeys stories also touch the hearts of political leaders, media reporters, and good-hearted people who have never heard of PH. Journeys stories create allies in our fight for a cure.

Share Your Story>>
Update your story: send updates to journeys@PHAssociation.org

Our Journeys Stories from the PH Community

Patients tell their story Diane Adkins Nakia Allen (added November 2007) Nina Amick Priya Balachandran Patricia Boaz Raye Bohn Katy Bove (added February 2008) Chris Campbell Debra Carrabbia LaVerne Cash Sharon Chetty Dolly Clinard Amy Cortney (added May 2008) Kristie Coulter Suzanne Cressell (added February 2008) Tom Darger (added October 2007) Margret DeVine (added November 2007) Kevin Doty (added November 2007) Bonnie Dukart Angela Eldam Eleanor Everett (added November 2007) Brittany Evans Susan Ferguson (added February 2008) Victoria Fink Elise Firestone Alex Flipse Julie Frazee Dee Freeman Tina Gillis (added February 2008) Debbie Greer Marilyn Haney George Harris Jennifer Hayes (added November 2007) Donna Head (added March 2008) Yoko Hooper (added October 2007) April Clemmons Hughes Donna Ice Joyce Iman Joanne Jacqueline Kirk Mary Ann Konola Betty Lait Julie Lisante Amy Long Sally Maddox (added May 2008) Lora Mausling (added October 2007) Charlotte McCabe Jessica McClure Rachel McFee (added October 2007) Amanda McKee (added October 2007) Lindsay Morales (added October 2007) Yunena Morales Keisha Nance (added October 2007) Robin Nelson Clarissa Newman Robert Ngo Valerie Norton Jill Oliver Neeta Pai 100th Journey Story! Patricia Patterson (added April 2008) Donna Pedersen (added November 2007) Art Petersen Leslie Polss shares her journey through cartoons (added February 2008) Cathy Price Lois Ramos (added December 2007) Donna Rennie (added November 2007) Nikki Rogers Earl Selvage (added April 2008) Tammie Sharp Jill Shaw (added February 2008) Monica Sifuentes Christine Silks Barbara Smith Carson Smith Julie Smith Michelle Snyder (added May 2008) Amy Stevens (added March 2008) Nancy Stubbs Yalan Tang & Chen Qi (patient & caregiver) Suzy Tarver Kiara Tatum (added October 2007) Debra Tenney (added December 2007) Barbara Thompson Maria Del Valle (added December 2007) Julia Vandenburg Valerie Varn Denise Wathen (added November 2007) Frank Williams (added December 2007) Heather Wilson (added October 2007) Sharren Yamron

Patient Stories -- as told by Caregivers/Family Vincent Accurso (as told by family) Diane Adkins Amber (as told by her mother, Orena Alsip) Amy (as told by caregiver Aaron Jackson) Derek (as told by his mother, Lynda Burdick) (added December 2007) Joel Brisco (told by friend, Marlene Jennings) (added October 2007) Paiton Cale (as told by her mother, Kati) Christen Cranford (as told by James Palmer) Jane Denham (as told by husband John) Lori Denison (added May 2008) Steve Ferguson (as told by his brother) Kathy Forrest Gail (Told by Liz Mahoney) Braden Gendron (as told by his mother) Emily Grace 5/31/06-11/14/06 (as told by Nancy Thompson) Maddie Heaton (as told by her mother, Lori) Janice (as told by caregiver Sharen Long) Jim (as told by Rose Bohmier) Josiah (as told by Jan Windz) Kari Lain (as told by her mother) Victoria Kate Lynn (as told by her mother and father) Cheryl Lynn Massaro - passed 10/2006 (told by Tina Deitchman) Evelyn Meledez (told by her mother) Chester Newby, Sr. (told by Orina Alsip) Quillarene Baker Rice Kathleen Richardson (as told by Jodi Palmer) Sarah (as told by Gary Atkinson) Gina Sauceda (added November 2007) Nancey Jane Schira (as told by Jeff Cox) (added October 2007) Peter Smoothy (as told by his sister) Joanne Stearns (about her young son) (added October 2007) Jordyn Cathryn Turner   05/08/02--09/10/04   (Told by Jenny Turner) Marcella Tuttle (told by Tiffany & Rebecca Tuttle) Denise Vigue (about her sisters) Henry Winkler (told by his wife) Sean Wyman (told by mother, Evan White) (added October 2007) Caregiver Stories Brian Corrigan Margaret Goodwin of husband, children, and grandchildren Pat Gunn Jean March Sarah Norton Yalan Tang & Chen Qi (patient & caregiver) Family Stories Judy Simpson, R.N., E.D.S - sister (PDF- profile in ATS News) Cherie Brewer - mother Debbie Castro Jessica D'Agostino Lisa Young - Racing in Memory of Fallen PH Mother PH Specialist Stories Francisco J. Soto, M.D., M.S. Researcher Stories George El Ferzli, MD Cristhiaan Ochoa, MD 2006 Conference Stories Raye D. Bohn Angie Eldam Amanda DaSilva Lynette Davis (added October 2007) Melanie Gertcher Heather Koczur Lian M. Latham, B.A., R.N. Sally Maddox Annette Markin Jennifer Nelson Neeta Pai Merle Reeseman Ken Schmidt

 

Patients | Medical Professionals | Caregivers | Media

The information provided on the PHA website is provided for general information only. It is not intended as legal, medical or other professional advice, and should not be relied upon as a substitute for consultations with qualified professionals who are familiar with your individual needs. Questions about the site? email web@PHAssociation.org Pulmonary Hypertension Association 801 Roeder Road, Ste. 400 Silver Spring, MD 20910 Copyright © 2008 Pulmonary Hypertension Association Read our privacy policy.

For optimal viewing of PHAssociation.org we recommend the following:

PC : Windows running Internet Explorer 5.5 or higher Macintosh: Internet Explorer 5.2 or higher free download from Microsoft.com   Macromedia Flash Player free download from Macromedia.com   Adobe Acrobat Reader 6.0 or higher free download from Adobe.com