Our Journeys

Video Journeys Watch videos of PHers’ stories on PHA’s YouTube channel>> Journeys Memorials Read and share your PH memorials>> PH Cartoons Leslie Polss shares her Journey through cartoons>>

PHA’s Our Journeys campaign allows the PH community to share their stories and raise awareness. We want to hear your story! That means all of the downs and all of the ups, the challenges as well as the successes. No story is too small to share with us.

To newly diagnosed patients, these stories provide hope. They also provide serious but welcome information about what it means to live with this illness. Journeys stories also touch the hearts of political leaders, media reporters, and good-hearted people who have never heard of PH. Journeys stories create allies in our fight for a cure.

Share Your Story>>
Update your story: send updates to journeys@PHAssociation.org

Our Journeys Stories from the PH Community

Patients tell their story Diane Adkins Nakia Allen Nina Amick Pam Bagwell Priya Balachandran Yolunda Barquet M. Cindy Bennett (added June 2009) Marcia Beverly Patricia Boaz Raye Bohn Katy Bove Chris Campbell Debra Carrabbia LaVerne Cash Janet Cecil Sharon Chetty Julie Clark Marilyn Clements Dolly Clinard Jody Coffey (added June 2009) Colleen Amy Cortney Kristie Coulter Kim Craft Suzanne Cressell Sue Crowder Tom Darger Margret DeVine Diana Kevin Doty Bonnie Dukart Angela Eldam Portia Ellis (added June 2009) Eleanor Everett Brittany Evans Susan Ferguson Victoria Fink Elise Firestone Alex Flipse Julie Frazee Dee Freeman Mary Gillam Tina Gillis Suzanne Gonzales Debbie Greer Cheryl Guillory (added June 2009) Marilyn Haney Ellen Harris George Harris Jennifer Hayes Donna Head Yoko Hooper Barbara Howard April Clemmons Hughes Donna Ice Joyce Iman Karen Janjanin Joanne Honey Kennedy Mary Ann Konola Dr. Felix Lara Betty Lait Patricia Lawson (added June 2009) Bettie Lewis Julie Lisante Carolyn Lombard Amy Long Sally Maddox Lora Mausling Charlotte McCabe Jessica McClure Rachel McFee C. Ken McGee (added June 2009) Amanda McKee Hara Mihalea (added June 2009) Lindsay Morales Yunena Morales Lora Moranti Kevin Mueller Keisha Nance Hasnaat Naushahi Karima Neal (added June 2009) Robin Nelson Clarissa Newman Robert Ngo Valerie Norton Jill Oliver Neeta Pai 100th Journey Story! Patricia Patterson Donna Pedersen Art Petersen Leslie Polss shares her journey through cartoons Sheryl Powell Cathy Price Lois Ramos Donna Rennie Rodger Richardson Tonya Robertson Nikki Rogers Earl Selvage Tammie Sharp Jill Shaw Belinda Shrestha Monica Sifuentes Christine Silks Barbara Smith Carson Smith Julie Smith Michelle Snyder Amy Stevens Nancy Stubbs Linda Sullivan (added June 2009) Yalan Tang & Chen Qi (patient & caregiver) Suzy Tarver Kiara Tatum Susan Temple Debra Tenney Jennie Thomas Barbara Thompson Katie Tobias Maria Del Valle Julia Vandenburg Sandy Vandiver Valerie Varn Penelope Vazquez Denise Wathen Brenda Weisz Melanie Whitesides Frank Williams Heather Wilson Sharren Yamron

Patient Stories -- as told by Caregivers/Family Vincent Accurso (as told by family) Diane Adkins Eliana Alderete (as told by mother Lyndsi) (added November 2008) Amber (as told by her mother, Orena Alsip) Amy (as told by caregiver Aaron Jackson) Derek (as told by his mother, Lynda Burdick) Joel Brisco (told by friend, Marlene Jennings) Paiton Cale (as told by her mother, Kati) John Chastain (as told by his wife, Dawn) Caroline Clemens (Told by Beverly Clemens) (added June 2009) Christen Cranford (as told by James Palmer) Jane Denham (as told by husband John) Lori Denison Steve Ferguson (as told by his brother) Kathy Forrest Gail (Told by Liz Mahoney) Braden Gendron (as told by his mother) Emily Grace 5/31/06-11/14/06 (as told by Nancy Thompson) Katie Grace Groebner (as told her mother, Kathy) Maddie Heaton (as told by her mother, Lori) Janice (as told by caregiver Sharen Long) Jim (as told by Rose Bohmier) Jim Jordan (as told by his wife, Nancy) Josiah (as told by Jan Windz) Kari Lain (as told by her mother) Tina Loader (Told by Shirley Loader) (added June 2009) Victoria Kate Lynn (as told by her mother and father) Cheryl Lynn Massaro - passed 10/2006 (told by Tina Deitchman) Thomas McGlynn (Told by his mother) (added June 2009) Evelyn Meledez (told by her mother) Chester Newby, Sr. (told by Orina Alsip) Parker (told by mother Jennifer) Quillarene Baker Rice Kathleen Richardson (as told by Jodi Palmer) Olga Rosskopf Cassella (as told by her sister, Ilma) Sarah (as told by Gary Atkinson) Gina Sauceda Vanessa and Valerie Sauceda (told by Gina Sauceda) (added June 2009) Nancey Jane Schira (as told by Jeff Cox) Peter Smoothy (as told by his sister) Joanne Stearns (about her young son) Jordyn Cathryn Turner   05/08/02--09/10/04   (Told by Jenny Turner) Marcella Tuttle (told by Tiffany & Rebecca Tuttle) Yolanda Vasquez (as told by her daughter, Thelma) Denise Vigue (about her sisters) Sophia Volino (as told by Stephanie Volino) Sieglinde Wilson Henry Winkler (told by his wife) Sean Wyman (told by mother, Evan White) Caregiver Stories Allen Brian Corrigan Margaret Goodwin of husband, children, and grandchildren Pat Gunn Jean March Sarah Norton Yalan Tang & Chen Qi (patient & caregiver) Family Stories Judy Simpson, R.N., E.D.S - sister (PDF- profile in ATS News) Coleen Bethel Cherie Brewer - mother Debbie Castro Jessica D'Agostino Lisa Young - Racing in Memory of Fallen PH Mother PH Specialist Stories Francisco J. Soto, M.D., M.S. Researcher Stories George El Ferzli, MD Cristhiaan Ochoa, MD 2006 Conference Stories Raye D. Bohn Angie Eldam Amanda DaSilva Lynette Davis Melanie Gertcher Heather Koczur Lian M. Latham, B.A., R.N. Sally Maddox Annette Markin Jennifer Nelson Neeta Pai Merle Reeseman Ken Schmidt

 

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