Our Journeys

View Full Cartoon Leslie Polss shares her PH journey story through her cartoons. View All Leslie's Cartoon Journeys

PHA’s Our Journeys campaign allows the PH community to share their stories and raise awareness. We want to hear your story! That means all of the downs and all of the ups, the challenges as well as the successes. No story is too small to share with us.

To newly diagnosed patients, these stories provide hope. They also provide serious but welcome information about what it means to live with this illness. Journeys stories also touch the hearts of political leaders, media reporters, and good-hearted people who have never heard of PH. Journeys stories create allies in our fight for a cure.

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Update your story: send updates to journeys@PHAssociation.org

Our Journeys Stories from the PH Community

Patients tell their story Diane Adkins Nakia Allen Nina Amick Priya Balachandran Yolunda Barquet (added August 2008) Patricia Boaz Raye Bohn Katy Bove Chris Campbell Debra Carrabbia LaVerne Cash Janet Cecil (added August 2008) Sharon Chetty Julie Clark (added August 2008) Dolly Clinard Amy Cortney Kristie Coulter Suzanne Cressell Tom Darger Margret DeVine Kevin Doty Bonnie Dukart Angela Eldam Eleanor Everett Brittany Evans Susan Ferguson Victoria Fink Elise Firestone Alex Flipse Julie Frazee Dee Freeman Tina Gillis Suzanne Gonzales (added August 2008) Debbie Greer Marilyn Haney George Harris Jennifer Hayes Donna Head Yoko Hooper April Clemmons Hughes Donna Ice Joyce Iman Joanne Honey Kennedy (added August 2008) Jacqueline Kirk Mary Ann Konola Dr. Felix Lara (added August 2008) Betty Lait Bettie Lewis (added August 2008) Julie Lisante Carolyn Lombard (added August 2008) Amy Long Sally Maddox Lora Mausling Charlotte McCabe Jessica McClure Rachel McFee Amanda McKee Lindsay Morales Yunena Morales Lora Moranti (added August 2008) Keisha Nance Robin Nelson Clarissa Newman Robert Ngo Valerie Norton Jill Oliver Neeta Pai 100th Journey Story! Patricia Patterson Donna Pedersen Art Petersen Leslie Polss shares her journey through cartoons Cathy Price Lois Ramos Donna Rennie Rodger Richardson (added August 2008) Nikki Rogers Earl Selvage Tammie Sharp Jill Shaw Monica Sifuentes Christine Silks Barbara Smith Carson Smith Julie Smith Michelle Snyder Amy Stevens Nancy Stubbs Yalan Tang & Chen Qi (patient & caregiver) Suzy Tarver Kiara Tatum Debra Tenney Barbara Thompson Maria Del Valle Julia Vandenburg Sandy Vandiver (added August 2008) Valerie Varn Denise Wathen Melanie Whitesides (added August 2008) Frank Williams Heather Wilson Sharren Yamron

Patient Stories -- as told by Caregivers/Family Vincent Accurso (as told by family) Diane Adkins Amber (as told by her mother, Orena Alsip) Amy (as told by caregiver Aaron Jackson) Derek (as told by his mother, Lynda Burdick) Joel Brisco (told by friend, Marlene Jennings) Paiton Cale (as told by her mother, Kati) John Chastain (as told by his wife, Dawn) (added August 2008) Christen Cranford (as told by James Palmer) Jane Denham (as told by husband John) Lori Denison Steve Ferguson (as told by his brother) Kathy Forrest Gail (Told by Liz Mahoney) Braden Gendron (as told by his mother) Emily Grace 5/31/06-11/14/06 (as told by Nancy Thompson) Katie Grace Groebner (as told her mother, Kathy) (added August 2008) Maddie Heaton (as told by her mother, Lori) Janice (as told by caregiver Sharen Long) Jim (as told by Rose Bohmier) Josiah (as told by Jan Windz) Kari Lain (as told by her mother) Victoria Kate Lynn (as told by her mother and father) Cheryl Lynn Massaro - passed 10/2006 (told by Tina Deitchman) Evelyn Meledez (told by her mother) Chester Newby, Sr. (told by Orina Alsip) Quillarene Baker Rice Kathleen Richardson (as told by Jodi Palmer) Olga Rosskopf Cassella (as told by her sister, Ilma) (added August 2008) Sarah (as told by Gary Atkinson) Gina Sauceda Nancey Jane Schira (as told by Jeff Cox) Peter Smoothy (as told by his sister) Joanne Stearns (about her young son) Jordyn Cathryn Turner   05/08/02--09/10/04   (Told by Jenny Turner) Marcella Tuttle (told by Tiffany & Rebecca Tuttle) Yolanda Vasquez (as told by her daughter, Thelma) (added August 2008) Denise Vigue (about her sisters) Sieglinde Wilson (added August 2008) Henry Winkler (told by his wife) Sean Wyman (told by mother, Evan White) Caregiver Stories Brian Corrigan Margaret Goodwin of husband, children, and grandchildren Pat Gunn Jean March Sarah Norton Yalan Tang & Chen Qi (patient & caregiver) Family Stories Judy Simpson, R.N., E.D.S - sister (PDF- profile in ATS News) Coleen Bethel Cherie Brewer - mother Debbie Castro Jessica D'Agostino Lisa Young - Racing in Memory of Fallen PH Mother PH Specialist Stories Francisco J. Soto, M.D., M.S. Researcher Stories George El Ferzli, MD Cristhiaan Ochoa, MD 2006 Conference Stories Raye D. Bohn Angie Eldam Amanda DaSilva Lynette Davis Melanie Gertcher Heather Koczur Lian M. Latham, B.A., R.N. Sally Maddox Annette Markin Jennifer Nelson Neeta Pai Merle Reeseman Ken Schmidt

 

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