Our Journeys Submission

Thanks for helping us add to this section of the website. If you would like your photo to be included with your story, please e-mail it to awareness@phassociation.org.
NOTE: PHA respects your privacy -- the contact information requested is for office use only and will NOT be shared unless you authorize sharing your story with the press.

First Name:
Last Name:
Age:
Street Address:
City:
State/Province:
Phone:
Email: (required)
I am a: PH patient
caregiver
medical professional
This story is about my: self
child
parent
partner
other family member
friend
Please check the statements below that apply to you:

Yes! I understand the importance of raising PH awareness through the media. PHA may share my story with the press.

Yes! I want to share my story with other PHA members. PHA may use my story in their publications.

I want to be part of PHA's "Our Journeys" project to help create a history of our community. However, I would prefer that my story remain confidential at this time.

Please use as much space as you need to tell your story. You may include any information that is important to you!

If you need some inspiration consider writing about:

  • your diagnosis
  • what medications you take
  • how PH has affected your family
  • how you first connected with the PH community
  • how you have contributed to the PH community (i.e. been part of a support group, wrote to your Member of Congress, participated in a fundraising event or awareness activity etc.)
  • your first experience with at a PHA conference…

Thanks! Feel free to contact the Advocacy and Awareness Department at awareness@phassociation.org with any questions.


Story: