We are here to serve…
Our support group network has grown to more than 200 groups throughout the United States and Puerto Rico. PHA coordinates the work of nearly 300 leaders – patients and caregivers who are managing their health, their families and their lives – who also volunteer to run patient support group meetings. The Support Group Leadership Training Institute, endowed by United Therapeutics has enabled us to connect these busy leaders in meaningful ways including, but not limited to, providing web-based and telephone trainings.
Support Group Leaders Discuss 2024 Plan
PHA’s Support Group Leader Advisory Board recently convened in-person for the first time in-person since 2019. The advisory board met Nov. 5 in Washington, D.C., where members discussed support group programming for PHA 2024 International PH Conference and Scientific Sessions, as well volunteer training and appreciation. Learn more.
Northeast Support Group Leaders Participate in Training
Support group leaders from four states recently participated in a regional training session organized by the Pulmonary Hypertension Association’s Support Group Leader Training Institute. The July 28 event attracted seven leaders from Massachusetts, Maine, New York and Rhode Island.
What’s New With PHA Support Groups?
Support group leaders from Iowa, Ohio, Oklahoma and South Dakota share news from recent meetings. Find out what’s new, how to join a support group or become a leader.
Support Group Leaders Enhance Skills at Training Workshop
Support group leaders from California and Arizona participated in the Pulmonary Hypertension Association’s most recent Support Group Leader Training Institute. The May 7 event in San Diego featured interactive activities to enhance participants’ skills in planning, promoting, hosting and managing support group meetings.
Support Group Forms Book Club
The New York City-Manhattan Support Group recently launched a book club to provide new opportunities for people with pulmonary hypertension (PH) to engage online. Leader Alicia Kubes started the support group in 2018 and has been expanding its focus since the pandemic began. The online group aims to discuss books through the lens of living with PH; patients throughout the U.S. are welcome to attend the June 9 meeting.
Support Group Leader Advisory Board Names New Member
The Pulmonary Hypertension Association (PHA) welcomes Doug Taylor to its Support Group Leader Advisory Board. Doug, who was diagnosed in 2003, has led the Midlands-Columbia group in South Carolina for 16 years. Doug is known for celebrating each day. “If we make each day a holiday and celebrate, it makes our life fuller,” Doug says.
PHA Support Groups Share Holiday Celebrations
Pulmonary Hypertension Association support groups came together for holiday cheer, many for the first time since the pandemic. Get a glimpse of the celebrations in this round-up. Read more and browse the photos.
Thank You to Our Volunteer Support Group Leaders
The Pulmonary Hypertension Association (PHA) recently showed appreciation for its support group leaders with a virtual holiday party. The party featured two videos: One that features PHA staff and members of our Support Group Leader Advisory Board and a roll call of support group leaders’ names. See the videos.
Spotlight on Support Groups
With some Pulmonary Hypertension Association support groups shifting from virtual to hybrid or in-person meetings, support group members have come up with creative ways to reconnect. Learn what support groups in Chicago, Los Angeles and Minneapolis-St. Paul, are doing to build connections.
PHA Looks to Start Support Groups in New Cities
Start a PHA support group in your hospital or clinic! Support groups provide patients and caregivers a chance to meet others living with pulmonary hypertension in a welcoming environment intended for education and support. PHA provides training, resources for speakers, meals and more. Learn more.