PH Pediatric School Resource Handbook 

PHA’s Pediatric Parents working group and PH Resource Network Education Committee are pleased to introduce the PH Pediatric School Resource Handbook.

The electronic handbook provides general educational materials for schools regarding pulmonary hypertension and the impact it may have on your child, as well as information about the medications used to treat the disease.

This resource is intended to provide guidelines for school staff. Since every child with PAH is unique, the handbook also provides plenty of opportunities for personalization to allow you to best describe your child and his or her needs.

Online Handbook (Word)

• Letter to parent(s)/caregiver(s) explaining how to best use the handbook
• General letter to the school
• Student’s emergency information sheet
• Medication list and activity restrictions
• Medication information:

We hope that this online handbook will provide you with resources to help educate and improve communication with the staff at your child’s school. 

For more information please contact Robyn Duarte, Medical Services Program Associate, at 301-565-3004 x761 or phrn@PHAssociation.org.