December 14, 2011

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    Robyn Barst honored for her work with pediatric pulmonary hypertension

Opening a Door to PH Pediatric Research

On Nov. 7, Bob Gray in PHA's Development Department and I traveled to New York for a small but important celebration ... an event that we hope will someday soon mark a turning point in pediatric pulmonary hypertension research. » Read more

What's In This Issue

» Spotlight On... 50 State Media Challenge
» Get Smart
» Website Discoveries

» PH Community Scoop
» From the PHA News Desk
» PH News Headlines

Spotlight On...
    50 State Media Challenge

50 State Media Challenge Gains More Than 50 New Stories

The PH community scored a ton of PH-focused news victories during October and November. How many? Fifteen PH stories appeared in the news in October and a whopping 37 stories ran during PH Awareness Month in November! We’ll share the final numbers for the year and an updated 50 State Media Challenge map in a future issue of PHANews. Stay tuned! » Read about the stories that ran during Awareness Month

Get Smart
    PHA Classroom

Holiday Eating Recorded Webinar

The holiday season is upon us! During the holiday season, it is especially important for PH patients to pay attention to their diets. Listen as Dr. Myung Park discusses how to maintain healthy eating habits when faced with holiday treats and larger meals. » View recording

Website Discoveries
    Lantos Awards

Things I Found by Kathryn Frix: Lantos Awards

I found a great resource on the PHA website. This week my inspiration came from a post on the PHA Discussion Board, where I read that a community member is thinking of producing an informational video about people who have PH from drug use. » Read more

PH Community Scoop
    Sarah Smiles Event

An Event-ful Awareness Month!

PHA extends a big thank you to all those who strengthened PH Awareness Month efforts by hosting a special event.
» Check out all of the November events

    Parents Telephone Support Group

Parents Telephone Support Group

Thurs., Dec. 15, 8:30 p.m. ET/ 5:30 p.m. PT
Call in to connect with other parents of children with PH for support, encouragement and information sharing. This conversation will be open for one hour — join us for as long as you’d like. » Learn more

    Telephone Support

Caregivers Telephone Support Group

Wed., Dec. 21, 1:30 p.m. ET/10:30 a.m. PT
It can be a challenge to balance the holidays, your loved one’s care, and care for yourself! Call in toll-free to connect and share strategies with other family members of adults with PH. » Learn more

From the PHA News Desk
    Conference Emails

Conference Email Alerts

Want to receive the most up-to-date information about PHA’s 10th International PH Conference and Scientific Sessions? Sign up for the Conference Email Alerts and never miss a single update as more information becomes available! » Sign up now

    Holiday Giving

Make a Gift to PHA and It Doubles

Thanks to a matching challenge from Actelion Pharmaceuticals, the first $25,000 in donations to PHA's End of Year Appeal will be doubled. The holidays are a busy time. If you haven't already responded to our mailing, help us make the match with a gift today.

    transplant group

Ask Your Transplant Questions and Share Your Story!

PHA's Transplant email group brings together patients considering transplantation, transplant survivors and patients or family members curious about the transplantation process. To find out more about this group, contact Meghan Finney at or join the Transplant email group now.

PH News Headlines

» A Tale of Two Conferences

» Early Detection of Pulmonary Hypertension is Important

» More News

Connect with PHA

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Upcoming Events

Jan. 11, 2012
Registration opens for PHA's 10th International PH Conference and Scientific Sessions
Orlando, Fla.

Feb. 17 - 18, 2012
British Columbia Pulmonary Hypertension Society - 11th Annual PH Symposium
Vancouver, Canada

  Feb. 18, 2012
Strut Your Stuff Against PH
Wilkes Barre, Pa.

» Go to the Events Calendar

Video Spotlight

Sean Wyman talks about living with PH

Sean Wyman, a Young Adult Advisory Board Member, talks about living with PH. He created this video to round out PH Awareness Month this November and encourages you to share it with your online communities. » View the video

Read this week's Generation Hope blog post "What is the Generation Hope blog?"
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.