August 22, 2012

       
 
PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    Express Yourself

Expressing Yourself is the Pathway to Healing...

Expressing yourself is the pathway to healing. Those were the words of Lester Friedman, PhD, a humanities professor whose career has been at schools of medicine. » Read more

What's In This Issue
   

» Spotlight On... Special Events: "Zebra-fied!"
» Get Smart
» Living Better with PH
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...
    The Zebra PHriends PHun Walk

Special Events: "Zebra-fied!"

PHA Special Events across the country are adopting our new early diagnosis campaign, Sometimes it’s PH, and its symbol, the zebra, in unique ways to increase public awareness of pulmonary hypertension. » Read more

Get Smart
   

No support group in town? Pick up the phone!

Thursday, Aug. 23, 8:00 p.m. ET/5:00 p.m. PT
Want to chat with another patient? Can't make it to a local support group meeting? A support group is only a phone call away. Our Patient Telephone Support Group makes it easy to participate regardless of your work hours, distance or health concerns. » Learn more

   

Disability Assistance Step by Step: Preparing an Effective Application

Wednesday, Aug. 29, 2:00 p.m. ET/11:00 a.m. PT
Applying for Social Security Disability benefits can be challenging, but preparation and the right documents can make it easier. Join Amy Jackson of the Caring Voice Coalition and Charlotte McCabe, a PH patient and successful SSD applicant, for tips on the process — from deciding to apply to what to do if you receive a denial. » Register now

Living Better with PH
   

When Should You Call Your PH Center?

It can be difficult to know when you should call your PH center. Sometimes you shouldn't wait for your next scheduled appointment or phone call. Here are some good reasons to pick up the phone. » Read more

PH Community Scoop
   

Special Events: Walking, Rolling, Painting and More!

Our volunteer special event organizers turned up the heat this month by hosting PHA Special Events in their communities! This month featured five inaugural events and one veteran event. We extend a huge thank you to these organizers. » Read more

From the PHA News Desk
   

Spread the Word About Early Diagnosis

On Sept. 1, PHA’s early diagnosis campaign, Sometimes it’s PH, will begin its push for submissions of diagnosis stories and zebra pictures. In preparation for this kick off, join PHA’s new Facebook event to spread awareness of pulmonary hypertension and support for our campaign. Join the Facebook event | Visit the campaign website

    iSEEK Cultural Center in China

iSEEK Receives a PHA International Seed Grant

PHA’s International Program is pleased to announce that a new seed grant has been given to iSEEK Cultural Center in China. The group plans to use the grant to enhance its website and to create awareness videos that can educate people across China about PH. » Learn more about PHA's International Seed Grant Program

Medical Community Bulletin
    PHA Online University

Palliative Care and PH Patients

Monday, Aug. 27, 1:00 p.m. ET/10:00 a.m. PT
Join Winifred Teuteberg, MD, from the University of Pittsburgh School of Medicine for this webinar covering palliative care, how it differs from hospice care, the barriers to proper care and what can be done to overcome these obstacles to help patients gain access to the care they may need. » Register now

    PHA Online University

Investigating the Role of Micro Particles in PH

Wednesday, Aug. 29, 1:00 p.m. ET/10:00 a.m. PT
During this webinar, Natalie Bauer, PhD, a researcher at University of South Alabama, Mobile, discusses the work her lab is doing to determine whether micro particles can function as a specific marker for the development and progression of PAH. » Register now

   

Building Medical Education in PH Event in California

Sept. 10-15, Monterey, Calif.
Organized by Georg Hansmann, Stephen L. Archer and Margaret R. MacLean, Keystone Symposia’s Conference on “Pulmonary Vascular Disease and Right Ventricular Dysfunction: Current Concepts and Future Therapies” will emphasize the role of stem cells in pulmonary vascular disease and repair, growth factors, TGF-beta/BMP signaling, metabolic regulators, microRNAs, innovative PAH clinical trials and identifying novel biomarkers. » Learn more

PH News Headlines
   

» Homely to Homey: Camillus Family Wins Exterior Home Makeover and Raises Awareness of Pulmonary Hypertension

» Watch the Documentary RARE on National Public Television Starting August 2012

» More News

Connect with PHA

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Upcoming Events

Aug. 30, 2012
PHA Night with the Iron Pigs
Allentown, Pa.

Sept. 1, 2012
Central Florida PHun Walk & 5K
Lakeland, Fla.

Sept. 8, 2012
PHA on the Road: PH Patients and Families Education Forum
New Brunswick, N.J.


» Go to the Events Calendar

Generation Hope Blog
In Honor of Our Lives
 
 

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.