August 8, 2012

PHA News, Pulmonary Hypertension Association, Empowered by hope
Latest Blog Post from PHA's President
    Conference 2012 Attendees

Surfing the blogs...

Blog information seems to flow like the waters. This afternoon, PHA's VP for Community Engagement, Mollie Katz, sent a note about a blog that focused on PHA's Research Room at Conference. Reading that first blog got me exploring.... » Read more

What's In This Issue

» Spotlight On... PHA on the Road
» Get Connected
» Website Discoveries
» PH Community Scoop

» From the PHA News Desk
» Medical Community Bulletin
» PH News Headlines

Spotlight On...

PHA on the Road: Remember to Register!

Take time today to register for PHA on the Road, PHA’s FREE regional patient and family education forum. We will be stopping in New Brunswick, N.J., (Sept. 8) and the Chicago, Ill., area (Oct. 13) with networking, educational sessions, exhibits and more. Space is limited so register early! » Learn more

Get Connected

Caregivers Telephone Support Group

Wednesday, Aug. 15, 1:30 p.m. ET/10:30 a.m. PT
Call in toll free to connect, learn and share strategies and experiences about caring for an adult with PH. The call lasts one hour; join us for as long as you like. » Learn more


Parents Telephone Support Group

Thursday, Aug. 16, 8:30 p.m./5:30 p.m. PT
Connect with other parents of kids with PH for support, encouragement and information sharing. The call lasts one hour; join us for as long as you’d like. » Learn more


No support group in town? Pick up the phone!

Thursday, Aug. 23, 8:00 p.m. ET/5:00 p.m. PT
Want to chat with another patient? Can't make it to a local support group meeting? A support group is only a phone call away. Our patient telephone support group makes it easy to participate regardless of your work hours, distance or health concerns. » Learn more

Website Discoveries
    Coping Resources

Things I Found by Kathryn Frix: Coping with PH

I am so inspired by those who share their experiences with others in the PH community, and by those who ask the difficult questions. Coping with PH emotionally is often at the forefront of the discussions. » Read more

PH Community Scoop
    Women Reading

PHA's International Conference: Photo Slideshow Now Available!

Check out our Conference Photo Slideshow for some great candid photos of all that our 10th Conference had to offer. » View photos

From the PHA News Desk
    Dr. Stephen Mathai

Researcher Profile: Dr. Stephen Mathai, Johns Hopkins University

Dr. Stephen Mathai is one of 48 talented researchers who has received a grant from one of PHA’s research programs. In addition to increasing what is known about PH, Dr. Mathai says working with PHA, “enables me to provide better care for patients and stimulates me to study the cause, effect, and potential treatment of this disease.” Help ensure that PHA can continue to fund dedicated and talented researchers like Dr. Mathai. » Support PHA's research program today

Medical Community Bulletin

Webinar: Medical Professional Involvement in Support Groups

Thursday, Aug. 16, 1:00 p.m. ET/10:00 a.m. PT
Join Debbie Castro and Sophie Klein, PHA's Volunteer Services team, as they discuss the ways you can provide support to your patients by getting involved with a local PH support group. » Register now

PH News Headlines

» Pulmonary Researchers Participate in Pulmonary Hypertension Association's International Conference

» Breakdown of Oestrogen Could Be Linked with Pulmonary Arterial Hypertension

» More News

Connect with PHA

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Email a mentor. Patients and caregivers are ready to support you.

Upcoming Events

Aug. 9, 2012
PHA Happy Hour with Bank of America
Roanoke, Va.

Aug. 10, 2012
Messages of Hope
Selden, N.Y.

Aug. 18, 2012
Santa Barbara PH Funwalk for a Cure
Santa Barbara, Calif.

» Go to the Events Calendar

The Topic Nobody Wants to Talk About
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Pulmonary Hypertension Association 801 Roeder Road, Ste. 1000 Silver Spring, MD 20910
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The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.