May 14, 2014

 
       
PHA News, Pulmonary Hypertension Association, Empowered by hope
Blog Post from PHA's President
    iSeek

World PH Day: Pieces of a Brilliant Mosaic

As I've watched it grow and evolve over the past 16 years, I've come to see it as a beautiful mosaic.  The power of that beauty flows from people who unite around the common cause of fighting this disease. First, in 1991, four women sat around a kitchen table in Florida in the United States. » Read more

Webinar with Pediatric Researchers
    beakers

Meet the Barst Pediatric Research Fund Awardees

May 27, 8 p.m. ET/5 p.m. PT
In 2012, PHA established the Robyn J. Barst Pediatric PH Research and Mentoring Fund in memory of Dr. Barst, a pioneer in the field of pediatric PH research and treatment. In this webinar, the 2014 grantees, Drs. Mehdi Fini and Melanie Nies, will discuss their research and the potential applications for pediatric PH treatments. » Learn more and register

Tips for Living with PH
    PHA Classroom

Understanding How to Maximize Your Independence for Everyday Living

Stacey Moran Gausling, an occupational therapist and PAH patient based in California, recently presented a webinar on how to maximize living with PH. The presentation focused on tips and tools to modify your environment and other daily tasks to gain more independence in everyday activities. » Watch the recording now

Send a Note of Thanks
    Heart

Honor Those Who've Made a Difference in Your Life

Many people are affected when your life or the life of your loved one has been touched by PH. Acknowledge those who’ve made a difference in your life with a Note of Thanks and Remembrance in PHA's 2014 Conference slideshow. For $25/entry (50 word max.), you can make your appreciation or memories known to the more than 1,500 attendees expected at Conference. Act now, the deadline to submit a note is May 15! » Submit a note

PHA Ranks on Charity Navigator
    Charity Navigator - Four Star Charity

PHA Receives Top Rating from Charity Navigator

For the eleventh consecutive year, PHA has received a Four Star rating from Charity Navigator, the premier evaluator of charities in the U.S. "Less than 1% of the charities we rate have received at least 11 consecutive 4-star evaluations, indicating that PHA outperforms most other charities in America,” according to Charity Navigator. “This 'exceptional' designation differentiates PHA from its peers and demonstrates to the public it is worthy of their trust." » Read more

PH News Headlines
 

 

 

Research & Treatment News

» FDA Meeting with Pulmonary Arterial Hypertension Patients Highlights Model for Public-Private Partnerships

» Triple Therapy Shows Promise for Severe PAH

» Ambrisentan Cleared for Use with Phenprocoumon

» Canadians with Pulmonary Hypertension Face Serious Health, Social and Financial Impacts: New Survey

» PAH Risk Factors Identified for Systemic Sclerosis Patients

Updates From PHers Around the World

» PH Plus Blog: A Mother's Day Post

» Conference 2014 Blog: Two Community Members Honored with Julie Hendry Memorial Award

» Pulmonary Hypertension Association Founders Honored at NORD Portraits of Courage Gala

» China's "Blue Lips" Struggle for Recognition, Treatment

» Norway Woman with Rare Pulmonary Disease Adjusts to Different Life

» World Pulmonary Hypertension Awareness Day

» More News

Connect
with PHA

 

Telephone Support

Caregivers
May 21, 2014
1:30 p.m. ET/ 10:30 a.m. PT

Patients
May 22, 2014
8 p.m. ET/5 p.m. PT

Parents
May 27, 2014
8 p.m. ET/5 p.m. PT

Upcoming Events

May 17, 2014
5th Annual Race 2 Cure PH: Taylor Caffrey Memorial 5K
San Francisco, Calif.

May 17, 2014
ATS Patient Forum
San Diego, Calif.

May 19, 2014
Inaugural 'Dining for Cure' at Straw Restaurant
San Francisco, Calif.

June 1, 2014
O2 breathe Walk
New York, N.Y.

June 6, 2014
O2 breathe Golf Outing
Mundelein, Ill.

» Go to the Events Calendar

Got a question about living with PH? Ask a PHriend!

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NORD

The National Organization for Rare Disorders (NORD) awarded PHA the Abbey S. Meyers Leadership Award in 2012 for outstanding service to PHA members in advocacy, education and other key areas.